Discussion Topic

Tell us your story

Posted on 04/11/08, 01:26 pm
I was diagnosed at 19 although I have shown symptoms since 12. I had 3 laps, the last one found endo on my bladder. I went through Lupron, so many different birth controls and hormones. Finally I had my uteus and cervix removed at 21. Two months later I had pain again. I went on Lupron one more time with no results again. Currently I'm taking Neurontin for pain. I'm also on Danazol and doing very well with it. Just buying time until I have to have another surgery. I'm fighting to keep my ovaries. I want to be at least 30 before I put my body through that.

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This group is for women who've had a hyst due to endometriosis who still have problems with this disease. Anyone considering a hyst is also welcome.


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