Prop H8I get asked this question frequently by my clients that have panic attacks. Usually it starts with the recounting of a recent panic attack where many of the symptoms felt like serious medical conditions. The most typical being a heart attack. Some of the more common symptoms reported to me are; hard to breathe in deeply, heart pounding, sweating, tingling, tunnel vision and a feeling as if about to faint.
Clients also tell me that they have a general feeling of being "not well." Along with that is a preoccupation with a fear of dying. Clients have intense worry that they are sick with a disease or will suffer some tragic accident. They often make frequent visits to the doctor with real physical symptoms, have many tests and often the tests and exams find nothing wrong. It can be very embarrassing to keep returning to the doctor when the symptoms do not go away only to be told over and over that there is nothing wrong. Clients often feel stigmatized as a hypochondriac and then dread going to the doctor or retreat from seeking medical care all together.
So how do you tell the difference between a panic attack symptom and something more serious? It's virtually impossible at first to tell the difference. If you have never experienced a panic attack before, there would be no other logical explanation to your symptoms other than something is terribly wrong and thinking that you are going to die. It is only after it happens a few times are you able to start distinguishing a pattern. Understanding that these symptoms are not related to an underlying medical condition is a joint venture between you and your doctor. It's always important to get any physical symptoms checked out first by a medical doctor prior to shifting the focus to panic symptoms.
Once you get an all clear from your doctor you can begin to focus on the panic symptoms and identify the patterns. It's important to note all the symptoms; when they appear, the order and duration. Also, how long in between are the panic attacks occurring. Identifying and distinguishing panic symptoms from physical symptoms related to a medical condition is an important step to reducing and eliminating panic attacks.
But I do empathise very much with Shantiann and her frustrations.
Whilst general practitioners and therapists can diagnose and help treat the anxiety/panic disorder conditions and provide support to the sufferer, there is often a lack of true understanding of the degree of suffering that we go through. I recall once in an acute panic state desperately ringing my doctor for help - I really thought that I was going to die! He meant well I'm sure - but he told me to have a hot bath! As if in the state I was in I could possibly have even got to the bathroom and place myself in that vulnerable state - when I was totally overwhelmed with utter fear and anguish, and couldn't even move...
I just want to stress that a panic attack is one of the most debilitating, frightening, terrifying, sorrowful, alarming, distressing ...... experiences that one can ever have in their life time! The need/desperate desire is for IMMEDIATE HELP and RESCUE, otherwise you are going to DIE! It's as simple as that (from my perspective anyway). I once picked up a pamphlet which aptly stated: " PANIC ATTACKS ARE SUDDEN FEELINGS OF INTENSE TERROR!!! " - that's excactly how I found them, and the only people who can truly understand are fellow sufferers!
I'd just like to share with others, that I've been a panic disorder (with agoraphobia) sufferer for 22 years. I have tried everything from meditation to relaxation therapy, to yoga, to intense prayer (which does provide great comfort ). On a couple of occasions via prayer, when I've had to pull over to the side of the road in panic whilst driving my car - it seemed miraculous how some religious person arrived on the scene (as if from nowhere) to instil courage in me to continue safely on.
I've read every self-help book there is to read on the subject (the best I think are those written by Claire Weekes). I've been to various therapists. But nothing has helped me more than having been on an anti-depressant for the last seven years, along with a very low dose benzodiazapene. And, I shouldn't say this, but in all honesty I've resorted to drinking on occasions - a very dangerous scenario, and another problem in itself (as I have discovered, and as we all know). One shouldn't really drink when on these medications of course, or only moderately!
A professional, trusting, caring therapist - who even rings after hours to see how you're doing is also a Godsend, and worth searching for. I have recently made a vow to never try again to wean myself off anti-depressants, because I have finally realised, like a diabetic requires insulin - I need them, and they help stabilise me, and the quality of life is far superior. I have not had a panic attack for some years now! I still pray, and God is my greatest strength but he too gave us doctors and pharmacists, and I respect them and am grateful (but of course not all are perfect!)
To finalise, of course the greatest cure for panic is to learn to no longer fear it - that is a hard one, but many people have successfully defeated the 'fear-cycle' as Claire Weekes appropriately describes it. I did overcome a couple of the many tormenting aspects, ie shopping in supermarkets etc, but some, I just can't get a grip on.
I do sympathise so much with my fellow sufferers of this and similar conditions. It's not an easy road for us, and it definitely is something physiological, not "all in our minds". I think that's interesting about the "cell-memory" concept - makes sense.
So distinguishing the difference may or may not help and it certainly isn't the be all end all solution.
The medical profession (including all therapists) could help a lot by not making snap decisions AND not pigeon holing us. ACTIVE LISTENING and a tad of EMPATHY would be a good start. Of course that flies against most medical institutions' protocol and ability to make as much money as they can...
I believe that panic/anxiety disorder is a combination of physical and emotional. For me the physical comes first then leaves the anxious/panic-y feeling.
Personally, I believe in cellular memory and I suspect that's where panic originates. Physicists have proved that cells do have memory. And I think the medical profession should pay more attention to that as well as their patients. After all, WE are the ones that KNOW our bodies the best.
The majority of us who suffer with PD are intelligent enough to truly know what you're talking about....but that's all it is. An understanding of what you are talking about. It does not, and I repeat, it does not change one bloody thing when the attacks start to come again. No amount of refocusing, CBT, or drugs (unless they’re addictive sedatives!) help.
We get lulled into believing that we have learned to "manage" this lovely little disorder, only to quickly learn time and again, no matter what we do, they always, always come back. It just depends on the severity of this round of panic this time.
No matter what we know intellectually or how we learned to deal with it, either cognitively or pharmacologically, nothing anyone says or does changes our belief patterns at the times of the attacks. It’s not like we don’t want to change them, we do…we just can’t. And then we are admonished for not trying hard enough, not concentrating enough, not practicing enough, and the list goes on until we feel more like a failure than we already did.
I cannot speak for everyone but I will speak for myself and a few of my friends who deal with this on a more frequent, daily basis. If we could indeed stop these train-wrecks of behaviors and thought patterns, we would do anything to do just that. But experience has taught us that they do not work. A lot of us "fake" that they do work for varied reasons: We see the frustration of our PCP's dealing with us; We see our loved ones and friends beginning to reach the breaking point in dealing what is our disease, not theirs.....and the list goes on an on. But what you as clinician's and doctors DON'T understand is that we see it on you. We see it in your actions, your body language and certainly the care as the frustration begins to sink in deeper for all of you...we are not blind.
So we retreat and then retreat some more. And each time we retreat and no one can "see through us" on WHY we are retreating, it just solidifies that pattern of pretending that what you’re doing is kind of helping, even if it’s not because you are the only hope we have left.
What I would say is a very high number is you have yet to see any of this. We truly have learned or been conditioned to (once a certain point has been reached) to now become the greatest actor/actress’s that the outside world has ever seen.
Once we've embarrassed ourselves ad-nauseum with doctor's and they have now "flagged us" so that we can't even walk into an emergency room anymore because we all know once they pull up our records we are considered "one of them"....the over-emotional, hypochondriacally, emotional disturbed patients who are from that moment on treated differently, if we could just crawl under the gurney and out the door we would because now we know we have to suffer further indignities while being “treated” until we are released. Treated like little children who do not have all their marbles upstairs, they humiliate us further. We are shuffled off to the side where we are left as chattel on the side of the road that no one wants to deal with.
And no, for once, this is NOT in our heads. I've seen it done while WAITING in an ER for a friend and someone comes in ill....all of a sudden, nurses, doctors, and other caregivers meet in a corner of their/your cubicle whispering about how on your chart you suffer from PD and "that's probably all it is. Give him/her something to make them feel better and send them home.” Never mind that your arm may be swinging by a single tendon, people with PD exaggerate what's wrong with them…give her a tranquilizer and tell them to go see their doctor in a few days. Case closed, they cleared out another person in the ER..
I guess the most dehumanizing thing about having PD is that you are then no longer treated as an informed patient, but instead treated as someone who's looking for an illness. I've even had an ER doc check to see if my friend had Munchhowzen's (spelling?) because she finally had had enough and decided to be totally honest and went down the list of symptoms she's had since she's hit puberty.
She didn't wind up in the psych ward but it was debated.....all for telling the truth.....all for so desperately wanting to get some sort to treatment, any kind of treatment to have some semblance of a "normal" life. We retreat….we isolate…and why shouldn’t we after years of being treated like this?
Maybe our symptoms are not life threatening but they are real physical symptoms nonetheless and are NOT psychosomatic. And trust us when we tell you that we HAVE done the work on identifying, keeping records, et., etc., That doesn't work for the majority of us and for the few that it does work for, we can only hope that will be us one day, but it does not work and probably won't work for the more severely afflicted.
Eventually as in everything else, we just put on our acting faces once again and give you what you need to hear because we see the breaking point coming for you and we're too tired to start again with someone else. Why bother anyway? It would only be a matter of time before they too reached that point of frustration.
Thank you for listening to the ramblings of a person with Panic.
I do have a question for you….Has a study ever been done on how many suicides are related to PD? It would be an interesting report.
I mean no offense Ms. Cohen so please understand my musings here are coming out of frustration towards "medical professionals" that have never had a panic attack in their life so are basically clueless as to what really goes on when the panic attacks start, worsen, and then get their very own zip codes within our bodies.
The majority of us who suffer with PD are intelligent enough to truly know what you're talking about....but that's all it is. An understanding of what you are talking about. It does not, and I repeat, it does not change one bloody thing when the attacks start to come again.
We get lulled into believing that we have learned to "manage" this lovely little disorder, only to quickly learn time and again, no matter what we do, they always, always come back. It just depends on the severity of this round of panic this time.
No matter what we know intellectually or how we learned to deal with it, either cognitively or pharmacologically, nothing one says or does changes our belief patterns at the times of the attacks. I cannot speak for everyone but I will speak for myself and few of my friends who deal with this on a more frequent, daily basis. If we could indeed stop these train-wrecks of behaviors and thought patterns, we would do anything to do just that. But experience has taught us that they do not work. A lot of us "fake" that they do work for varied reasons: We see the frustration of our PCP's dealing with us; We see our loved ones and friends beginning to reach the breaking point in dealing what is our disease, not theirs.....and the list goes on. But what you as clinician's and doctors DON'T understand is that we see it on you. We see it in your actions, your body language and certainly the care as the frustration begins to sink in deeper for all of you...we are not blind.
So we retreat and then retreat some more. And each time we retreat and no one can "see through us" on WHY we are retreating, it just solidifies that pattern.
What I would say is a very high number, is you have yet to see any of this. We truly have learned or been conditioned to (once a certain point has been reached) to now become the greatest actor/actress that the ouside world has ever seen.
Once we've embarrassed ourselves ad-nauseum with doctor's and they have now "flagged us" so that we can't even walk into an emergency room anymore because we all know once they pull up our records we are considered "one of them"....the over-emotional, hypochondriac, mentally disturbed patients who are from that moment on treated differently. You all listen, but not one hears us.
We are then shuffled off to a region where we are left as chattel on the side of the road. And no, for once, this is NOT in our heads. I've seen it done while WAITING in an ER for a friend and someone comes in ill. As “one of us, you see it immediately, you instinctively know what at least part of the problem is”...all of a sudden, nurses, doctors, and other caregivers meet in a corner of their/your cubicle whispering about how on your chart states you suffer from PD and "that's probably all it is. Give him/her something to make them feel better and send them home.” Never mind that your arm may be swinging by a single tendon, people with PD exaggerate what's wrong with them……pretty sad scenario isn’t it? Open your eyes to see clearly for one day and look around. You will be quite surprised as to how often you will see this now that you have been informed.
I guess the most dehumanizing thing about having PD is that you are then no longer treated as the informed patient that you try to be. But instead you are now being treated as someone who's looking for an illness. I've even had an ER doc check to see if my friend had Munchausen's because my friend was finally frustrated enough and decided to be totally honest and went down the list of symptoms she's had since she's hit puberty.
She didn't wind up in the psych ward but it was scarily debated. All for telling the truth.. All for so desperately wanting to have a "normal" life like everyone else? Or at least some semblance of normality?
Maybe our symptoms are not life threatening but they are real physical symptoms nonetheless and are NOT psychosomatic. And trust us when we tell you that we HAVE done the work on identifying, keeping records tracking the severity and the how’s and why’s, et., etc., All on your promises that this will lesson the PD. That doesn't work for the majority of us and for the few that it does work for, we can only hope that it will be us one day. But it's now and probably won't be for the more severely afflicted. Eventually as in everything else, we just put on our acting faces and give you what you need to hear because we see the breaking point coming again and we're too tired to start again with someone else. Why bother anyway? It would only be a matter of time before they too reached that point of frustration and the whole circle jerk starts again. It’s exhausting. Not only do we fight against our PD but to have to battle the people who claim to want to help us too?
I wish you well in your endeavor to help us and hope you do eventually find something that may help, or at the least, someone eventually find something…anything-----a lot of us are running out of hope….Please feel free to share my ramblings with your colleagues. Maybe this can shed a glimmer of light into their client’s daily fight for life.
Until then, we retreat, we withdraw, and we isolate some more----and yet no one sees this? Yes, because we are the greatest actors in the world-----we have to be.
Sincerely,
Shantiann