Just curious. I am on Avonex, and I know it is s'pose to slow down the progression, but, is there anyone here who is not on a medication for... http://www.dailystrength.org Sat, 18 May 2013 04:08:03 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://static.dailystrength.org/templates/images/promo/logo-round-rss.gif http://www.dailystrength.org http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex. I am not happy about being on nothing as the new symptoms keep coming & I am averaging a flare up about every 3-4 months - thats one that puts me in hospitl. ...]]> Mon, 21 Sep 2009 06:18:16 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 21 Sep 2009 07:21:10 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex 1 yr did not work, went on copaxone for a while then tysabri came out started working then the FDA pulled it, went back on copaxone, then tysabri came back out went back on it, did not notice a difference-went back on copaxone, exact 6 months later had a bad flare ...]]> Mon, 21 Sep 2009 10:06:23 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage research indicating that the MS drugs slow the progression of MS... After being on betaseron for over 8 years, I took a 5 year break from the drugs. In that time, my MS got worse. Is it because I was not on a med??? Nobody can answer ...]]> Mon, 21 Sep 2009 10:21:03 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage avonex 4 years and i moved. i found a prominant neuro in baton rouge who sent me to a more prominant neuro in houston at the university MS center. upon viewing films of my MRI, the man said no MS, only one lesion in the brainstem and in only 20 minutes time, took away my dx AND my Avonex. i...]]> Mon, 21 Sep 2009 11:57:42 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Research LDN http://www.lowdosenaltrexone.org/ http://ms.about.com/b/2009/04/21/ju...]]> Mon, 21 Sep 2009 12:32:10 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage hope for a cure! :) Hang in there!]]> Mon, 21 Sep 2009 13:51:26 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex but topped because of the side effects. I then tried Copaxone but had to stop due to side effects. I was not on anything for a year. My doctor then told me I had secondary progressive and I was getting progressively worse, so I started Tysabri. At least the progression seems to h...]]> Mon, 21 Sep 2009 15:55:45 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 21 Sep 2009 17:10:15 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage walking but need frequent rests... I hope you all realize that we are ALL very different... In my 23+ yrs. of MS, I've been on a treatment for 9 1/2... As I get...]]> Mon, 21 Sep 2009 18:33:27 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 21 Sep 2009 19:23:58 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex due to still running and working as a PT. Neuro said hindsight from a wc...]]> Tue, 22 Sep 2009 02:21:34 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex.]]> Sat, 07 Nov 2009 21:25:33 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Nexium, Reglan, Lyrica and 120 mg of Cymbalta. I am not on DMD because I went at least 30 years without being diagnosed and I am really lucky because my case is mild. My biggest symptoms are muscle pain and fatigue but so far, thank God, I can walk, talk and pee app...]]> Sun, 08 Nov 2009 13:58:25 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage avoid gluten and beans but not very strictly. I take vitamins and a few supplements and aspirin. I have had MS for about six years, four with di...]]> Tue, 17 Nov 2009 21:12:12 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 18 Nov 2009 15:04:13 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Tysabri which is a monthly infusion and the first of the oral drugs should be out later this year with many more following after that. So hang in there and don't stop looking because of bad effects from the current drugs that are available.]]> Wed, 18 Nov 2009 17:32:14 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Thu, 19 Nov 2009 19:17:38 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage avonex, but the side effects were horrible,so now i i am not on any prescribed meds,i am currently self medicating with one of the more contreversal meds,and seem to be doing ok]]> Thu, 03 Dec 2009 11:26:30 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage beta interferon but it wasn't then prescribed. Had last two relapses in 2007 but relatively minor compa...]]> Thu, 03 Dec 2009 15:10:44 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Fri, 04 Dec 2009 04:45:23 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Fri, 04 Dec 2009 09:08:04 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage books & the internet. Think I am winning because I've been in remision for the last decade & have some symptom improvements. No pain, good energy & have found a way to sleep...]]> Fri, 04 Dec 2009 09:58:38 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Sat, 05 Dec 2009 12:54:26 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Vitamin D.]]> Sat, 05 Dec 2009 19:21:07 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage ldninfo.org]]> Sun, 06 Dec 2009 09:20:20 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Copaxone for 2 years without positive effect, only side effects (some of them scary). I decided to investigate my own health problems with help from various medical professionals. I really got focused on a healthy lifestyle with r...]]> Sat, 16 Jan 2010 14:22:24 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Sat, 16 Jan 2010 22:38:39 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage birth control pills...hmmm) then bouts of VERTIGO, tingling, numbness, disorientation until another major exacerbation when I was 46 and entering menopause. I c...]]> Tue, 02 Feb 2010 11:03:41 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage heat ! I am due to go to the dr on jul 6th and i am kinda wanting to get off the meds and just keep a close look out. I have not had any other signs of MS other than Optical Neuritis(...]]> Tue, 29 Jun 2010 18:21:45 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage http://www.mscenter.org/images/stor...]]> Tue, 29 Jun 2010 20:34:44 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Rebif. It made me really sick so I chose to go off of all meds. I feel pretty good, but have my days with the heat and all. Guess Ive been lucky, but lately tons of stress, need to get back with a neuro when I move back to Oklahoma City,, Afraid of what a new ...]]> Wed, 30 Jun 2010 00:33:52 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 05 Jul 2010 18:43:16 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage lyrica and I am not sure how it is, but if it is to much trouble I will stop it because it is just not worth having so many side effects. As for your comment about speed...]]> Mon, 05 Jul 2010 23:29:16 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex weekend B4 Memorial Day. It was a scary decision, but the side effects were, FOR ME, greater than the tears in the decision to stop the injections. Why should I have to take a handfull of crap just to combat the side effects from one tiny shot? I have not tried other meds, but tha...]]> Mon, 12 Jul 2010 08:28:02 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage copaxone. just stoped for a bit due to liver and kidney pain.]]> Wed, 14 Jul 2010 03:16:30 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Fish Oil and Vit. D suppliments into my diet as that seems to be the things that my brain is craving or lacking or something. But my neuro and I talked about it and he agreed with me th...]]> Wed, 14 Jul 2010 10:33:11 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage hospitalization. Then tried Betaseron only to quit after just a few doses due to side effects. Went on Avonex in June 96 one month after it went on the market. Did have ...]]> Sat, 17 Jul 2010 17:47:40 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 27 Sep 2010 13:18:55 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Tue, 28 Sep 2010 08:45:06 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Tysabri or Gilenya. I am currently choosing neither. I have been fortunate and have been able to care for our 4 childern withou...]]> Tue, 28 Sep 2010 11:45:34 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex. I definitely had relapses when off the therapy drugs. Noticeable when off of interferon. Went off of interferon for two months -- one month before Tysabri and one month after Tysabri and I had a bad relapse. I kept losing my balance and falling. But with Tysabri, I had a ...]]> Fri, 01 Oct 2010 15:05:08 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage research since I have the rest of my life to sit around and something called lo dose naltrexone. It is a experimental drug but I have been on it since January and will never go back t...]]> Sat, 02 Oct 2010 16:11:42 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage tysabri had bad results. So right now im on nothing and im doing better then ive been in years knock onn wood. The doc wants to think bout putting me on LDN in jan cuz of stress mngt thru holidays but im not sure ive ...]]> Sat, 02 Oct 2010 17:51:23 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Sat, 02 Oct 2010 21:12:58 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage copaxone by my neurologist, but it is so expensive that I am waiting for finacial assistance from the company.]]> Sun, 03 Oct 2010 20:45:00 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Sun, 17 Oct 2010 05:54:07 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage lyrica and Baclofen for pain and spasms. I feel that exercise and a good diet through out my life has made me handle PPMS now. I am delighted to not experien...]]> Thu, 28 Oct 2010 21:37:40 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 03 Aug 2011 15:33:55 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex and Copaxone over a period of 5 years...when I started having trouble walking. The doctor switched me to Rebif, but I continued to get worse. I got him to give me LDN which I still take but the only other DMD option he gave me was Cellcept which I declined. Now two years later, my...]]> Wed, 03 Aug 2011 16:20:34 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex for 10 years and don't believe it helped me much. I've had 3 relapses in 22 years so that was not the issue for me. Like you, I kept going slowly downhill, I ran into a woman about my age with MS at one of these drug presentations. Outwardly she looked great. Her D...]]> Wed, 03 Aug 2011 17:12:32 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 03 Aug 2011 17:35:03 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 03 Aug 2011 20:07:04 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Fri, 05 Aug 2011 01:25:38 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Avonex and Rebif. I have also had steroids for Optic Neuritis. I took myself off all drugs last October and told my Neurologist that I would not consider Tysabri. I am on Ampyra for my walking and Neurontin for pain but other than that. Nothi...]]> Fri, 05 Aug 2011 12:57:28 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage prednisone, but in th...]]> Wed, 17 Aug 2011 19:14:31 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 26 Oct 2011 07:25:41 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 26 Oct 2011 10:27:23 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage reading about diet and supplements that help many others, I was determined to go this course. However, after reading the “Tip of the Iceberg” article by Dr. Vollmer (the ...]]> Wed, 26 Oct 2011 10:39:36 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 26 Oct 2011 11:56:50 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Atkins diet because it stops the inflammation, workout and take vitamins.. I dont plan to get on any of them, the side effects is too bad for me]]> Fri, 18 Nov 2011 08:44:19 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage naltrexone (works with your immune system & does not involve needles. Has been shown to keep MS from progressing & as well to fights cancer. Check ldninfo.org online. The best way to treat is with as few meds as possi...]]> Fri, 18 Nov 2011 09:40:45 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage rebif. I think I may have lost some memory that has also interfered with my emotions and train of thought. I've. Notic...]]> Sun, 04 Dec 2011 23:56:14 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Rebif after 2 and a half years. it caused a bloody raw throat, anemia, foot spasms, and other issues in addition to the flu like symptoms. Instead I have chosen a gluten free dairy free lifestyle with daily yoga. I feel 100% normal and just did a three mile run. my health drastically impr...]]> Mon, 05 Dec 2011 16:44:15 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage coffee with my dad, wine with my friends, ice cream with my son, and all sorts of things I enjoy. If I can't enjoy life, why live it? I think this i...]]> Tue, 06 Dec 2011 15:49:43 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage atkins diet, does that mean you only eat protein? I was wondering since animal protein does...]]> Mon, 12 Dec 2011 02:09:25 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Wed, 28 Dec 2011 01:32:47 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 09 Jan 2012 20:32:18 +0100 http://www.dailystrength.org/c/Multiple-Sclerosis-MS/forum/Treatments/8027884-anybody-not-med/lastpage Mon, 09 Jan 2012 20:50:47 +0100