I'e had OMG for a year...been on mestinon which has been only mildly successful in curbing droopy eyelid and double vision. Dr recommended I... http://www.dailystrength.org Thu, 20 Jun 2013 06:45:22 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://static.dailystrength.org/templates/images/promo/logo-round-rss.gif http://www.dailystrength.org http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Mestinon but I feel better and my symptoms aren't as severe. They gave me benadryl with it which zonked me out. I wasn't bored, but very sleepy. If they are going to give you benadryl, you might want to have someone dri...]]> Sun, 07 Feb 2010 11:35:10 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Sun, 07 Feb 2010 12:05:20 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Sun, 07 Feb 2010 14:49:42 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Sun, 07 Feb 2010 22:17:22 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIg is the only MG medication my body can tolerate. I take tylenol and benedryl right before they start my IV. I have it every 3 weeks and it takes about 5- 6 hours. I must have someone drive me because I am very weak afterwards. I am ALWAYS cold during the infusion, so they give me a blanket (...]]> Mon, 08 Feb 2010 10:37:45 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG for almost 2yrs, it is a great treatment. I also started out with OMG, but didnt need the IVIG until MG became Generalized several yrs later. As mentioned in previous postings, HYDRATE before going, during the infusion and afterwards. I am one of the unlucky ones who suff...]]> Mon, 08 Feb 2010 22:29:06 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG (which my neuro has told me about, too). I gather that this treatment is benefic...]]> Tue, 09 Feb 2010 06:21:45 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Thu, 11 Feb 2010 22:19:54 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG treatments start on Monday...I:ll post my reactions.]]> Fri, 12 Feb 2010 04:50:09 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Sat, 13 Feb 2010 00:16:52 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG therapy and amazingly my double vision has pretty much disappeared (about 80-90 percent improved!). I also don't have the droopy eyelid any more (at least for now). The IVIG involved spending four hours a day, for five days, with a tube stuck in my arm. The tim...]]> Sun, 21 Feb 2010 07:19:39 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG treatments for over a year every month. Unfortunatley it stopped working. for me. When it did work, they results were great. Good luck!]]> Sun, 21 Feb 2010 09:33:27 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage hope everything went well for you. The first one is the worst because it is a learning experience for you and your medical team. Hopefully with your knowledge prep about it it went as well as could be expected. I usually feel lousy for a couple days after so if you are tired/flu like don't fret...]]> Tue, 23 Feb 2010 11:05:59 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG treatments and I'm still pretty much off the mestinon and don't have the droopy eyelid or much double vision (It's not 100% percent better...maybe 75%). No side effects...I've been taking advil every day, though, just as a preventive measure! I see...]]> Tue, 23 Feb 2010 11:13:54 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG for a few days and I also get weaker for a few days post IVIG. but i have noticed a few times this chest pain/chest tightness. does anyone else ever have this pain?]]> Fri, 10 Feb 2012 14:47:48 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage IVIG several years ago, I found it wonderful. PLEX had stopped being effective so it was wonderful to find such a simple treatment that provided so much benefit with zero side effects (for me). Glad you are better!!! Curt]]> Fri, 10 Feb 2012 15:00:38 +0100 http://www.dailystrength.org/c/Myasthenia_Gravis/forum/9043501-ivig/lastpage Fri, 10 Feb 2012 15:35:40 +0100