What is von Hippel-Lindau Disease VHL

Von Hippel-Lindau disease (VHL) is a rare inherited genetic condition involving the abnormal growth of tumors in parts of the body which are particularly rich in blood supply. <...

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Symptoms, diagnosis and connection with Renal Cell
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Not quite sure of what von Hippel-Lindau Disease is, but ran into it when reading about renal cell cancer. I'm now concerned, as my husband has renal cell cancer, and I have two children with very prominent cafe au lait spots, which I have read is indicative of von Hippel Lindau. Can anyone tell me the connection between the two, how VHL is diagnosed, it's connection to renal cell cancer and whether I need to follow up for my kids with their cafe au lait spots?
Posted on 10/03/09, 09:10 pm
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Reminder: This is a support group for von Hippel-Lindau Disease (VHL). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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