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von Hippel-Lindau Disease (VHL) Support Group

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Symptoms, diagnosis and connection with Renal Cell

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kkzimm

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Not quite sure of what von Hippel-Lindau Disease is, but ran into it when reading about renal cell cancer. I'm now concerned, as my husband has renal cell cancer, and I have two children with very prominent cafe au lait spots, which I have read is indicative of von Hippel Lindau. Can anyone tell me the connection between the two, how VHL is diagnosed, it's connection to renal cell cancer and whether I need to follow up for my kids with their cafe au lait spots?
Posted on 10/03/09, 09:05 pm

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