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Anybody here?
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Hi, just wanted to check and see if this board is still active at all??
Posted on 04/12/08, 06:40 pm |
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I am here and dealing with VHL, as well. I am the MN chapter chair for the national support organization and we have local chapters all over.
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I was just wondering how things went for you. My dad died 30 yrs ago from complications of vhl and my brother has it as well.
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I'm leaving Sunday for NIH, and will be having my kidney/adrenal done on Tuesday. I'm looking forward to feeling better. I'll not be online for a week or so- but then hope to be back to it.
Thanks for asking. How is your brother doing?
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I am here and dealing with VHL, as well. I am the MN chapter chair for the national support organization and we have local chapters all over.

