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Zellweger Syndrome Support Groups
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I have joined this site and I offer two more sites one is for any peroxisomal disorder
http://health.groups.yahoo.com/grou... Another is the Zellweger Baby Support Network www.zbsn.org When my daughter was born with ZS there was hardly any information out there to help families so I am glad to see more and more interest and support for this rare and terrible syndrome. Posted on 12/19/08, 10:22 am |
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