What is Zellweger Syndrome
Zellweger syndrome is a rare, congenital disorder (present at birth), characterized by the reduction or absence of peroxisomes (cell structures that rid the body of toxic substance...
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I have joined this site and I offer two more sites one is for any peroxisomal disorder
http://health.groups.yahoo.com/gro... Another is the Zellweger Baby Support Network www.zbsn.org When my daughter was born with ZS there was hardly any information out there to help families so I am glad to see more and more interest and support for this rare and terrible syndrome. Posted on 12/19/08, 10:12 am |
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