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wilsons disease
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would anyone be ableto tell me if a liver biopsy is the way to get a true diagnosis?
Posted on 03/29/08, 06:34 pm |
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HI There.
I think at present there are a few ways to get true diagnosis. 1. Liver Biopsy 2. Lumbar Puncture. 3. Brown Rings around the Eyes which is a copper biuld up. Hope this is of use to you. All the best. Ultan, Ireland
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Yes, a liver biopsy would be the best way to get the diagnosis.
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i am 15 almost 16 and they think i have wilson's disease is that possable ?
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awicker, my gs was tested at 16 but they could not confirm. He is 19 now and being tested again. They are also going to xray his liver. Be thankful you have a doc who is knowledgeable of disease....many just ignore symptons.
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call to Mayo clinic in Minessota. a simple blood test to check for a specific gen will give you a def. answer. That's how my daughter was diagnosed
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I had blood tests and a very sharp minded actively listening physician.
Follow up tests were done too but did not need to get a biopsy.
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Most likely. Blood tests don't show anything.
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Daisy is right. My Dr.'s don't know how to handle Wilson's. I was able to go on the liver diet for a week to clean it out. I felt great for a while, then the cloudy brain appeared again. The ring around my left eye. I've started to studder. I need to go on the diet again. I get fatigued !
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How much is the blood test at Mayo clinic. Do you send away for it?
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I have been living with Wilson's for a long time & didn't know it.......
My Dad was Sicilian and had sea food often for us. Much of it was high in copper. I would get very sick. Very jaundice. I look back with horor of childhood............being punished for getting sick on my food. Bad memories.
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