Wilson's disease or hepatolenticular degeneration is an autosomal recessive hereditary disease, with an incidence of about 1 in 30,000 in most parts of the world. However it is muc...
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what's the process of getting diagnosed
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I am having trouble getting a doctor to give a diagnosis. We have had nine tests which consisted of blood work and 24hr urine copper test. I have yet to find a doctor to do a liver biopsy. I hear this is the only true way of knowing?
Posted on 03/30/08, 11:03 am |
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try this web site http://www.wilsonsdisease.org/ they have centers of excellence sites throughout the USA. if that does not help call
Kimberly F. Symonds Executive Director Wilson's Disease Association 1802 Brookside Drive Wooster, Ohio 44691 330-264-1450 888-264-1450 good luck 
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ask about the slit lamp test..must be done by opthomologist. They can see a copper ring around the iris if it's positive...was told this is the best way to diagnose
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