Wilson's disease or hepatolenticular degeneration is an autosomal recessive hereditary disease, with an incidence of about 1 in 30,000 in most parts of the world. However it is muc...
My father died February 25 because doctors did not care to follow up and let me take care of him at home as his kidneys dried up and he died in ICU. My entire family is dead and I really do not have much going on . I let my entire family down and now I pay the price. I am taking my medicine reluctantly because it would not honor my sister Carole who suffered for 27 years wit...
Got doctor bills for dad told them to send it to his new address: cemetery.I am so exhausted -no patience for anything. wish my thoughts would be quiet. I realized my luck is so bad . everyone I loved has had a problem that was unexpected and died. Only common antecedent is me. I feel like I started the ball rolling with all of them and they died because I failed them. How...
The sadness and emptiness is unbearable at times. I am only at peace when I am visiting the cemetery. I talk to my sister Carole , mom and dad. I just lay out a blanket and sit with them. It makes the day bearable. Walking helps in the morning -i get so anxious that I feel I am going to explode. Need to keep physically busy to keep from feeling the sadness that creeps up on me an...
Currently i am looking for anyone who knows something about Wilson's Disease. I find myself upset when doctors give me the run around. When I take my son to the doctor; the first thing they say is he doesn't look like a child with Wilson's. What does a child with Wilson's look like?? Then they proceed to examine him. After all that the doc says well i...