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Discussion:
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My 2 year old son just had his kidney removed becaue of Wilms tumor. We are waiting for the results from pathology to determine what type of chemotherapy he will undergo. The last 5 days have been like a haze, it is unbelievable and we wish it was a nightmare.

Can any of you guys give me some insight on what to expect with chemotherapy? We don't know anything, the doc's won't say much until the pathologist results come in.
Posted on 01/18/09, 08:47 pm
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Reminder: This is a support group for Wilm's Tumor. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 09/17/09  7:13pm
" hi there i know exactly what ur going thru. in feb 08 my 11 month old daughter was diagnosed with having LARGE tumors in her right kidney and a small 1 in her left. i thought i was gonna die and worse i fesred she wouldnt survive. basically she the first on feb 14 and continued with once a week chemo it started killing the cancer cells and in may 09 they took out her entire right kidney then 2 more months of weekly chemo and her last dose was aug. 14 2008. there were lots of CT scand ECO cardiograms. a million appts, i kept my afternoon part time job though. she's doing great now we all prayed and prayed.on her last CT scan i said to GOD if she's developed other tumors i cant believe in YOU anymore. and i gained 50lbs bc of the stress anxiety and sadness. so becareful and have faith. but 7 months later and she is cancer free in remission and 100% healthy again. and your son will be too. thru this all i learned patience, forgivessness, perseverence, strength, courage and ur son will too
. "
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Reply #2 - 11/16/10  1:36am
" hi
i am 13 and just went through agressive cycles of chemo for wilm's.
it is different for everyone, but after a cycle i felt tired and ill to the stomach. i sometimes had a headache.
Luckily this only lasted only 2 or 3 days and then i was fine.
Best of luck
Kia Kaha (stay strong)
Gemerald "
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Reply #3 - 12/08/10  1:27am
" Indeed, being faced with a child's cancer diagnosis is a parent's nightmare- one that begins upon waking in the morning, if you get to sleep at all at night.
Chemo is difficult and has it's own dangers, it's a risk versus benefit thing that the doctors are going to look out for. My son experienced the usual side effects like nausea, vomiting, hair-loss, fatigue and also had some frightening instances of low-platelet counts where he needed transfusions and an allergic reaction to one of the chemo meds that caused liver problems.
Like Kia Kaha said, "it's different for everyone." Whatever your son experiences, the important thing is to be there for him through this no matter how painful it is for us parents to watch our child suffer. Bear in mind that Wilm's tumor has a very good prognosis and is one of the success stories in the treatment of childhood cancer.

Love and strength,

Sunmaid "

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