Wilm's Tumor Support Group

I was wondering how many of you guys on here are suffering from that for a long time after treatment? I had a rhabdoid tumor which is very rare and there isn't group for it on here. But my tumor most closely relates to sarcomas and wilms (specifically because I had a unique case of rhadboid that grew out of one of my hip flexor muscles. They are usually limited to the kidney and the brain). I was exhausted for years after treatment, and no doctors would help me. I explained other symptoms of infection, but to no avail from doctors. I've just recently been diagnosed with staph, which is a big reason why I've been so tired since finishing treatment. I am posting this because I want people to be aware. I personally think in most cases so called "post cancer fatigue" probably has a unique infection attached to it. A lot of people I know got right back to their normal lives after having cancer, but then there is that group of people that just can't seem to get back up. I saw a specialist who deals with people with chronic fatigue and he was very knowledgeable about infections that most doctors don't think to look for. I want more people to hear this because I know that for the past 4 years I was miserable, and if you're tired like me, definitely don't give up or give in to taking stimulants for the rest of your life. It very well could be something more. Not necessarily staph, but some sort of an infection that is bogging you down. I finally am going to get healthy now, and I really hope that all of you are doing well with your diagnosis and are getting well ASAP. Just thought this might help someone who feels at a loss with their GP and oncologists when it comes to the fatigue issue not being resolved. I know I did. Love you all and good luck!
Posted on 02/03/12, 01:23 am