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Yesterday, our 22 month old daughter was diagnosed with Wilm's Tumor. Unfortunately, even though a am a physician, I am scared, angry and confused.
I found the mass in her abdomen while changing her last week. I just thought it was stool. When it did not go away after a couple of days, I looked at it with an ultrasound and realized then what was going on and we saw the pediatrician today and had an official study. Looks like tomorrow more scans and an oncology appointment. I am beside myself with anger and grief. I know that these are some of the normal stages I guess. I am trying to prepare myself mentally and emotionally. Does anybody have any pointers? What do I do? How do I treat her? Do we still try to potty train? We want her to lead a normal life. We want her to not feel sick. It is not in the literature clearly as to wether or not this affects intellegence. She finally just got in some blonde hair, did anybody do a wig? Ironically I have donated my hair about times in my life. We live far away from family. The children's hospital here seems like the best option. Everone is already offering help, but I do not know what I want or need. I know everyone's comments are well intended, I just do not know how to respond. Thank you. I hope some of you are still participating in this site. Posted on 12/21/10, 07:48 am |
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I am sorry to hear about this. Our son was diagnosed at 28 months. He has currently been off treatment since 6/2009. It is definitely scary I won't sugar coat it but you just have to think positive.
I wouldn't worry about a wig our son didn't care about losing his hair. We did not try to potty train he was under enough stress as it was going to the doctor once or twice a week. Because of chemo he also would only eat certain foods and we allowed it. Now we do have problems with his nutrition but it was the least of our worries at the time. Do you have more information as to the histology, stage? Caringbridge site? Let me know if you have any questions. I am sure by now you have been in contact with many people. 
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I had a Wilms' tumor when I was about two, and I just turned 19 last month. I can't really understand what you are going through since I am not a mother and I can't remember much from when I had cancer, but I though I could try to give you some encouragement.
Having cancer has never severely affected my life. You mentioned above that you were worried about it having an affect on her intelligence, but I have always had a normal level of intelligence and in fact have a slightly higher than average intelligence. It is hard to say the affects it has had on my development, since every girl is different. I was an early bloomer in most things though, so if anything rather than stunting your child it may accelerate her development. If you have any other question, I would be more than happy to help you.
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This is a 2012 reply. Pls give me an update and I will be glad to share my information. of my Wilms tumor in 1960. Prayers to your family..
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