Wilm's Tumor Support Group

we are going through chemo on a stage 3-4 but my daughter is not 5 yet they are doing the chemo just to make sure all the cancer cells that may have moved are also gone from her system ( we also have lymph nodes that got compramised) good luck with it all,

my 18 month old also had a complete right nephrectomy and they contineud 2 give her chemo afterwards to eliminate any more cancer cells reappearing for 2 months

My daughter (1yr) has stage 3 Wilms, Left Kidney removed, 1 lymph node tested positive for cancer. The Chemo is supposed to kill any free floating cancer cells that may have moved through the body before surgery or is left behind from surgery. This is to prevent further tumors. You should be able to find information on The Children's Oncology Group website.

Do you know which drugs and how often they will give chemo for stage 1?

Good luck.

My son had chemo to shrink the tumor then a nephrectomy of left kidney. The surgery went well- no spillage and lymph nodes were clean. After this he had radiation and he is still undergoing chemo as added insurance. I'd rather he finish all treatment now than cut it short and have it recurring later on.

I teach with a lady whose daughter was diagnoised with stage 4 Wilms last March. She went through many surgerys and chemo and as of October she was cancer free. She goes for more scans in a couple of weeks. Her parents have a website you may be interested in. http://www.allyscause.org/ i am so sad for you, no child should have to go through this and i have seen how hard it was on my coworker/friend. much love!

Hi everyone - I just wanted to say hello and offer my thoughts to you all. I am 38 years old and I am Wiilm's tumor survivor! I was diagnosed when I was 3 and had a left nephrectomy and a series of chemo and radiation treatments. I don;t have any memory of my actual treatment and I can only say how I know how scary it must be to go through this as a parent from what my parents have told me.

One thing to ask about (if you care in this decision) is what if any possible effects chemo or radiation *may* have (not definitely) on fertility. I know it is a wild thing to think about when your kids are so young and obviously the immediate health is the main concern. But just something to think about.

I am a happy healthy adult survivor of Wilm's - please feel free to reach out if you want to chat!