What is Williams Syndrome

Williams syndrome (also Williams-Beuren syndrome, sometimes called Pixieism) is a rare genetic disorder, occurring in fewer than 1 in every 20,000 live births.

It is characte...

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Hey! I just joined the group. My child is 22 months old and was diagnosed at 15 months because of high calcium and kidney problems. He goes to PT, OT, and ST twice a week.. He is still not walking. When did your children start walking? He is very frustrated. I stay home with lane so he does not play with a lot of children. From experiece do you guys think he needs to spend time with other children to help him out in the future?? Any advise would be great!! Thanks so much Annie
Posted on 05/12/09, 10:05 am
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Reply #1 - 05/12/09  4:13pm
" Hello Annie, Welcome to DS.
I'm trying to think back to remember what age my Son started walking (he's 21 now)....he didn't crawl until he was nearly two, so i think he was probably 4 or 5 before he walked. But obviously all WS kids are different, so it could be a lot sooner for your lad.
I think your lad would really benefit from being with other kids his age, most WS kids are so out-going and friendly, and i think it would be good for you too.
Drop us a line whenever,
Maggs xx "
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Reply #2 - 05/13/09  4:16pm
" Hello!
I have the same concern. My daughter is 20 months and not going to walk any time soon. I also stay home with her.

I have a friend in the area who has a daughter with WS who is now 4yr. She started walking right before she turned 3 yrs.

I talk her to the mall kiddie area and to parks so that she can see other kids. "
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Reply #3 - 05/14/09  9:55am
" Hi,
a
I´m also new, my name is Hana, and I´m from Czech republic. My son, Bartolomej, is now 2 years and 8 months old. We waited for his first steps to 21 months and he started walk regularly exactly in 2 years. Some pictures - http://www.bartolomej.own.cz/
Now we are working on eating and speaking...
Anny "
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Reply #4 - 05/18/09  12:09pm
" My daughter is 4 now & recently diagnosed earlier this month. she started walking about 2 & 1/2 -almost 3 years old. We started her in OT. They said she had low muscle tone. She also wore some sure step shoe inserts to help. She really benfitted from the OT. "

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