What is Williams Syndrome
Williams syndrome (also Williams-Beuren syndrome, sometimes called Pixieism) is a rare genetic disorder, occurring in fewer than 1 in every 20,000 live births.
It is characte...
Join Now
|
Need help with high calcium, weight gain
|
Watch this |
| View More Posts Ignore |
My grandson has Williams Syndrome. He was diagnosed at 19 months and has WS with Hypercalcimia. The high high calcium levels caused his skull to prematurely close and caused pressure on the brain which let to him loosing his vision, We are still working on trying to keep the high calcium under control and working with his blindness. Any suggestions will be greatly appreciated
Posted on 04/15/09, 10:04 am |
| 2 Replies | Add Your Reply |
| View More Posts Ignore | ||
|
|
||
| View More Posts Ignore |
my child has high calcium levels also.. we have delt with this since last july. He is calcilo formula and a low calcium diet. he can eat foods with calcium 2% and lower. He also had an iv treatment called pamidronate two times.. which is an iv drip in the hospital that takes like 12 hours. His calcium levels are down to the range of 9.5 to 10.5!!! He started at 14.8.. This treatment and diet worked for us!! Good Luck!! 
|
|
|
|
||
| Add Your Reply |
