What is Williams Syndrome
Williams syndrome (also Williams-Beuren syndrome, sometimes called Pixieism) is a rare genetic disorder, occurring in fewer than 1 in every 20,000 live births.
It is characte...
Join Now
Williams syndrome (also Williams-Beuren syndrome, sometimes called Pixieism) is a rare genetic disorder, occurring in fewer than 1 in every 20,000 live births.
It is characte...

|
Williams Syndrome in Australia
|
Watch this |
| View More Posts Ignore |
Hi, I,m looking for people with or have family members with Williams Syndrome that live in australia.
Posted on 03/28/09, 06:03 am |
| 4 Replies | Add Your Reply |
| View More Posts Ignore |
Hi there, My little girl, Anna, was diagnosed with WS last week. She is 3 monts old and we live in Bathurst NSW. I can't seem to find much support within Australia at all.
|
|
|
|
||
| View More Posts Ignore |
I probably wont be much help, as I'm in the UK, but have you checked out the WS Website.
I know I'm far away in person, but you can both Message me if you ever wanna chat. Love Maggs xx
|
|
|
|
||
| View More Posts Ignore |
I have a 3 yr old great grandson with WS, and he lost his sight about a yr ago, due to a calcium problem. These WS children are the most precious kids I have ever seen. Best wishes and prayers for you and your baby.
|
|
|
|
||
| View More Posts Ignore |
I know of a youg man that is 5yrs old that was diagnosed with this.but I am not over knowlegeable about alll of it.... Google research on it.. www.google.com and put William Syndrome in the browser..and go from there..
|
|
|
|
||
| Add Your Reply |
