What is Vulvar Cancer
Cancer of the vulva (also known as vulvar cancer) most often affects the inner edges of the labia majora or the labia minora. Less often, cancer occurs on the clitoris or in Barth...
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Paget's Disease of the Vulvar
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Hi, I am new to the group. Just diagnosed last week with Paget's Disease of the Vulvar. I am a 38 year old mum with a beautiful daughter who is almost 3. I am also 6 months pregnant with baby number 2 - so this diagnosis has come as a bit of a shock. My ob/gyn is arranging for me to see a specialist gyn/oncologist in the next fortnight to determine where to next!
I noticed a couple of discussions about Paget's in the group and wondered how many of the members have the disease and how you are going. Posted on 04/20/09, 11:04 pm |
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I was diagnosed recently with Pagets Disease of the Vulva. I had surgery (vulvectomy) about 3 weeks ago. The pathology showed some cancer. As Pagets Disease of the Vulva is rare, it is very rare that it is cancer. In speaking to my gyn oncologist and reading the internet, there is no protocol or clear handling of this situation. I went for a 2nd opinion to a doctor who actually wrote about this, and he too advised there is no clear protocol for this. One doctor wanted to remove the lymph nodes from the groin immediately while the other said the risk out ways the chance that the cancer is in the nodes. SO, do I take the chance, roll the dice, and keep the quality of my life rather than remove the nodes? Does anyone know? Aside from this dilema, the vulvectomy is the only sure way to go. There really is no alternative. I had a good surgeon that took the time to make sure I was left with something that looked normal. If not for the cancer, I would be fine. There apparently is a new cream in the testing stage to use that can hopefully prevent this from returning (because the odds is it will return). 
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