What is Turner Syndrome
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births[1]. Instead of the norma...
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Near DC???
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Anyone near DC, Rockville/Bethesda??? I'm trying to find anew doctor. I want to have a good physical and just get checked out by an endocrinologist because I haven't seen one in over 10 years. I've had my gyno handling my hormones/meds with my Turners. They just did blood tests because I've been having hot flashes and other symptoms and found that my thyroid level are out of whack so I need to find a good general practitioner and endocrinologist. Anyone have any suggestions for this area, I'm kin d of new here???
I hate going to the doctor, especially new doctors and having to explain all my issues. Is this just me??? Thanks!! Posted on 10/22/09, 05:10 pm |
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AmyL82,
I struggle with the same issue. i moved to Germantown, MD about a year and 1/2 ago. The best that i found is at the NIH. This just happens to be where i work. I am in a TS study there. They give all the test and meds for free. I do not have a general doctor though. I could get you more information if you would like. I have had issues with have to expaling TS to doctors before. hope this helps, Paula 
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I know it's not close to you at all, but I took the drive up to yale and the Dr I see there, the RE knows about turner's so I've only had to fight half as hard for him to drder the tests.
He's a common sense kind of guy, and doesnt' push you into it, rather wants to know what is important to the individual. I've had a lot of tests and hot flushes too, so i get monthly day 3 tests to see what menopause is thinking. Through him i've had a shed load of blood work, additional saliva sampling for genetic testing, which show's I also have MTHFR. And the more serious HSG to check for uterus shape and size as well as tubes, and then cardioechogram and cardio MRI to check for the heart defects, and renal ultrasounds to check the old kidneys out. I've also had some testing for carrier mutations that are not linked to Turners. And I'm starting IVF with PGD on my own eggs(if I have any left) Nov5th. Private message me anytime!
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