What is Turner Syndrome
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births[1]. Instead of the norma...
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How are you today? For me today is not a good day but it isn't a bad day either. It's an eh day, as it call it. This year has been stressful and the year isn't over yet. All I can hope for is that next year is better, even by a little bit. I'm also tired. Just tired. Tired of things, tired of people, and plain old sleepiness. It's one thing after another piling on top of each other. Then when one this is gone, two more things get addes on. It seems like it is never ending. People keep saying, "be positive." "there are people worse off then you so don't worry about the small stuff." But how can I be positive when things are so negitive? But we are in different situations and we are different people. Sometimes I just want to scream in a crowded area so people can notice me and my pain. A lot of the time I feel like I'm invisable. Like not even my closest friends see me. At times I question my friendship with people. I don't know what to do. I know that I'm rainting and typing random things, but all of this has kept me up at night. Online is a great place because know one knows you and you can type anything. Don't get me wronge, this is all real. I'm just saying that on the internet you can type your deepest, darkest secrets and get things off of your chest. And websites like this, were you find people who are messed up like you are and you can relate.
Posted on 10/21/09, 01:10 pm |
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Well I had an okay day, very sleepy then boring laundry and a rush to get all the other things done befor ethe day was over.
Then a friend from the past pop's her head up after 2 years, and I'm stressed by it. It's all good and there's a lot of love, but some people just have shitty timing. Where was she when I got engaged, married, miscarried, and again, and then diagnosed with so many things... ...so I woke up crying my eyes out, my poor husband suffers yet another broken sleep night. And I'm online to get that all off my chest. It is a good outlet, especially when you can only trust one person, and he's already over-loaded with his own emotoinal responses to the situation we are both in with my problems. It's nice to be crazy!! 
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Thanks for throwing up a place for people to vent! I'm actually having an awful day. I'm trying to make doctors appointments which is always a really stressful thing for me and I ended up in tears. I hate talking to new people about my Turner's. Mostly I feel embarrassed about it, which I know is silly . I just find it so hard to talk about, even to a doctor. So needless to say I don't talk to any of my friends about it either. I've hardly ever even told anyone about it. My husband says I shouldn't let it get to me because its just the way I was made, and he likes it so I should too. He's so sweet about everything and I know he's right but I can't help feeling embarrassed about it and wanting to keep it a secret. I just can't bring myself to tell any of my friends even though it would probably be a big relief to vent to some girlfriends about it instead of always throwing it all on my husband. Its so nice to have found this place to do that a little, and finally talk about it some. Am I the only one who feels like this? How much do you guys talk to your friends about this? I can't help feeling lost and alone and like I have to keep this big secret. I don't really know what I'm so scared of....
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To AmyL82. I'm kinda the same why. A few of my friends know that I have Turners's but we don't talk about it. Mostly I just think that they don't care. When I told y closest (well, was my closest) friend about what I have she said, "Oh that sucks, ohmygod I had such a weird dream last night..." That really hurt, but I told another friend and she started asking me all these questions. Oddly enough it felt good to tell somebody, even one person, what you go threw and what you will be faceing when you get older.
Lately things aer not going well for me. First of all I've had seven dental surgeries. My teeth came in like rocks and no one knew why, until now. The reason for it is because my bottom teeth are three "x" and my top teeth are one "x" (Do you know what I mean?). Now, my six front teeth are gone. I have these dencher like things that hook on to my back top teeth. But for the past few weeks my back teeh are hurting me. I noticed that one tooth is barely even there. Somehow it broke and I wasn't even aware of it. Now it's to the point were I can't eat (sometimes breath) without having this intense pain shooting in my mouth. Yesterday I told my mom that I had enough. My dentist say they want to "save my teeth", but they don't understand what I'm going threw. In each of my seven surgeries they said that this will be the last surgery and we will save your teeth. So did you save them by taking about my six front teeth? Anyways I told my mom enough and to call a dentist, any dentist, that will take out the remaining six teeth on top and give me a full thing of denchurs. I said if you don't call or if the dentist doesn't do what I say then I will take pilers and rip out my own teeth. I told some of my friends this and they all looked at my like I'm crazy. But I'm not crazy I just want this pain to end and I want one freaking dentist to listen to me!
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To AmyL82: I feel the same way and really don't know why either. I haven't told many of my friends and the ones that I have told, I really haven't gone into much detail. Guess I just feel that they can't relate and won't understand. Good luck with the doctor appointments and search!
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