What is Turner Syndrome
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births[1]. Instead of the norma...
Join Now
|
Is in need of help, please.
|
Watch this |
| View More Posts Ignore |
My name is Mikayla. I go to Methacton High School in Pennsylvania. I, myself, have Turner's Syndrome. There are two reasons why I am on this website/support group. One is to lear more about what I have. Two is because in Pennsylvania there is this project you have to do to graduate from High School. So, I decided to do the project on Turner's Syndrome. And I went on this website for help on my project from other people that have Turners.
For your help I need some information about you (or someone you know that has Turners). All I need is your age, what state you live in, how is it like to live with Turners, how old were you when you were told that you have this disease, is there any support groups you go to or is there anyone you talk to that helps you live with this disease, and anyother things you would like to add. You do not have to give me your name or username or anything you don't want to share. This will all be private, unless you give me your approval to share it with people. Thank you all very much for your time and help. Posted on 09/16/09, 02:09 pm |
| 3 Replies | Add Your Reply |
| View More Posts Ignore |
Hi Mikayla,
My name's Joanna, I'm originally form the UK, and have only lived in the states for 2 years or so. I found out in June that I have mosaic Turner's syndrome at 30%. So only 30% of my tested blood cells are effected. This means to some I'm lucky and to other's I'm not so lucky. For me it means I just have to be a little more careful about certain aspects of my health, such as getting regular exercise and not eating too much crap... ...so far that's normal. It's been a pretty stressful few months, but I'm still the exact same person I was before I found out I had a stamp on the bottom of my foot that says "Turner's". I've spoken to other women with higher levels of Turner's and they have been so kind and helpful to me. I met them all on websites like this one. I'm sure if you share some of your story others will respond with similar things. Take care, and remember, just because you have a label doesn't mean you're any different from most, it just means you know what your difference is. Jo xx 
|
|
|
|
||
| View More Posts Ignore |
Hey Im vickie. I do not have Turners Syndrom, but I did lose my daughter to Turners Syndrom when I was pregnant. I lam 21 years old and Live In Missouri.
|
|
|
|
||
| View More Posts Ignore |
Thank you Joanna for you story. And Vickie, I'm sorry for your lose.
|
|
|
|
||
| Add Your Reply |
