Turner Syndrome Support Group

I was cleared for IVF before I got colitis. I would research a really good place and make sure they they check you over before beginning the process.

Hi! I'm 28 years old and also diagnosed with TS. I'm four months pregnant through IVF and donated egg cells. Based on the doctor's evaluation, that is the best option for me. Aside from progesterone supplements, I am doing okay so far ... it's still a long way to go but we're very thankful of the progress

I had two miscarriages before I had my karyotyping done and found out in June.
I had to go to yale to find a Dr who'd take me seriously as I knew something was up.
I'm 27 been married just over a year.
I can't concieve a viable pregnancy alone as im 30% and the chances are highest for miscarrige, still birth, to the extent that the chances of me concieveing and delivering a child before menopause is ridiculously low.

So After all this rush of info and the sleepless nights waiting for tests and test results I've been okayed for IVF as my heart isn't too badly effects.
And I'm struggling with the system of contact with my Dr's office to make the appointments to start the PGD IVF.

If we don't do PGD we won't know if any of my eggs are viable, and we may be implanting eggs with no chance of life.
It's been a tough call to make with all the pressure of time.

We can't adopt, he's too old.

I just hope I can be a parent someday, I don't really mind if I have to use a donor egg, but there's been a lot of loss in the past couple of months.

It sounds like a really hard road. Thanks for sharing your stories. Hopefully I'll get cleared to try IVF when we start the process. Thanks and good luck to you guys!

Im 27, I had two miscarriage, one last october, and one in april..
this lead me to get pushy so I went to an RE for some simple testing which lead to my June09 diagnosis of Mosaic Turner's at a 30% ratio.

I am now doing PGD IVF.

The insurance company won't pay for it as I concieved twice and only miscarried twice so in their book I am "NOT" infertile.
If I had a thrid misacrriage then I would get it paid for.
If I had not concieved at all it would be paid for.

I am doing the PGD IVF with my own eggs, sure I get it I'm lucky,
the reality is 20% chance of sucess.
I am also going into menopause so I only have a 2 year window with my own eggs, if indeed any of them are viable enough to test let alone implant.

I do not think a Turner's baby would be a negative thing in my life at all.
The PGD choice is to maximize the chances of having a live birth from 2% to 20%.

I was also diagnosed with MTFHR, I don't know if it's Turner's related or not, there is no answer to that, however there is a reasonable cure for me,
more folic acid,
MTHFR is a folic acid defficiency.
I'm taking 1400ug instead of the 400 daily.
I am told by my RE if you take in too much folic acid you just pee out the excess, but run it by your RE or OBGYN first for their opinion.
I am not a medical personel.

Please feel free to ask me any reasonable questions at all.

Good luck to you all, no matter what your quest is.
Xx

opps didn't realise I'd already responded!!
Sorry!

Well just keep your focus on the outcome.

I'm more worried about it working and becoming a mother than I am about it not working and my buying a large dog or two.