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Discussion:
Losing my baby to TS
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I lost my little girl during my 2nd trimester on 12-23-08. Everything appeared to be normal until i went for an emergency ultrasound. Her heart had stopped beating, and by her size she was already smaller then she should have been. We were encouraged to do genetics testing on her, which we did, which is ultimately what lead us to Turner Syndrom. Ive never had such a hard decision to make, either find out what caused my little girl to die and sign over my rights as her parent, or cremate here and never find out what truly happened. She was also showing signs of Spalding syndrom, which had something to do with the TS. IM terrified to try again. Has anyone ever been through this. Please advise.
Posted on 03/26/09, 11:55 am
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Reply #1 - 03/27/09  10:29am
" I am so sorry for your loss. After our oldest daughter was born with Turners Syndrome and mild Cerebral Palsey, I was concerned about having another child. With the ecouragement of a special doctor we decided to go ahead and have another baby. I am so thankful for his advice and guidance, we had another daughter with no medical conditions. I know it is scary to think about trying to have another child. I would get the best medical advice I could and then try again. I thougth I would be so afraid through my whole pregnancy, but God gave me peace and I am so thankful we tried again. I personally have never heard of one family having two daughters with Turner's. I will be thinking of you. "
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Reply #2 - 03/27/09  6:20pm
" i'm so sorry for your loss as well. i'm the oldest of two and i have ts, and my sister has no medical conditions as well.

take care "
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Reply #3 - 04/02/09  5:13pm
" I AM SORRY TO HEAR ABOUT YOUR LOSS. MY DAUGHTER IS 9 WEEKS OLD AND HAS BEEN DIAGNOSED WITH TURNERS. SHE HAS A GREAT SPECIALIST. WE WENT MARCH 3. ONE OF MY QUESTIONS TO HIM WAS IF I HAD ANOTHER CHILD WHAT WOULD BE THE CHANCE OF A DEFFECT. HE TOLD ME BELOW 1%. TURNERS HAPPENS A CONCEPTION AND IS NO ONES FAULT. THERE IS NOTHING YOU CAN DO TO PREVENT IT. HE ENCOURGED US NOT TO LET THAT STOP US FROM HAVING ANOTHER CHILD. HE VARY RARELY SEES TURNERS HAPPEN AGAIN WITH IN 3 GENERATIONS! "
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Reply #4 - 04/18/09  6:06pm
" (((((HUGS)))))) I am sorry! Love and prayers, I am here if you need to talk or chat.... "
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Reply #5 - 04/18/09  11:11pm
" I am so sorry you lost your daughter... I too lost my daughter, Kierstyn was 2 wks old as she had TS (narrowing of the aorta) she also stopped breathing in the Emergency room at the hospital for over 10 mins so her survieal rate was around 2% since she needed heart surgury to keep going but she was not getting better as the week went on so we had to make the hardest desicion of mine and my husbands life and let her go back to heaven... Originally when I was pregnant with Kierstyn it was unknown that she did have TS until she was 9 days old, Kierstyn was my first child but I have had two more children after her..
My second child Brett is 19m old and the newest addition Darrin he is 8wks old... I had an amnio done with both my boys just for my sanity.. Please don't close the door to more children even though it is hard to except what has been taken from us...
Best Wishes
and lots of hugs,
Michelle "
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Reply #6 - 06/18/09  7:43pm
" I've had two documented miscarriages at 8weeks and 6 weeks.
I just found out I have turner's mosaic.
I found out about 4 ours ago and I don't know anything.
I'm so scared. "
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Reply #7 - 07/21/11  1:34am
" I am so sorry for your loss, and I want you to know your not alone. II went through this in April of 2003. I was at the beginning of my second trimenster, when my baby was diagnosed with Turners Syndrome, she passed away a week and half later. I was really scared when I became pregnant again about a year later, but this time my baby was healthy, and in January of 2005 I gave birth to a very healthy baby girl. In October 2008 I gave birth to very healthy baby boy, so there is hope. I was told when I lost her it wasn't hereditary so I wouldn't have to worry about my future pregnancies, but the worry will be there, stay positive, everything will work out. "
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Reply #8 - 07/28/11  4:02pm
" I am a mother who also lost our child to Turner's Syndrome. She passed away at 39 weeks-the night before I was to be induced. I have never talked to anyone else who has Turner's Syndrome and especially have never talked to a mom who lost her baby to Turner's. I am relieved in a way to read these posts-I now know that I am not alone. We are currenly trying again and so far no baby yet....I am terrified to death of losing another child-I am trying my absolute hardest most days to stay sane-I just don't think that I would make it through another loss. But then again-my dream in life is to be a mother so for now I am going to face the fear if we do become pregnant. I would love to keep in touch with any mom who has a baby with TS or any mom who has lost a baby to TS. "
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Reply #9 - 09/01/11  12:29pm
" Big hugs and prayers! "

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