What is Trisomy 18 Edwards Syndrome
Trisomy 18 or Edwards Syndrome (named after John H. Edwards who first described the syndrome in 1960) is a genetic disorder. It is the second most common trisomy after Down Synd...
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Its great to see a community on here for this, I have never met or spoken to anybody that has dealt with T18, maybe that is why I am finding it so hard to deal with?
All of you I have spoken to since I joined this community on Monday have been fantastic, thank you so much for all your love and support. If any of you need to chat about anything I'm here. Take care Georgie x x Posted on 09/19/07, 06:09 am |
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I am glad I can help. I have been in your sister's shoes, so I know what the whole family is going through.
When I lost Stephanie, there wasn't much support from other families like there are now. I have found that T18 is more common. I have also found that most people decide to terminate the pregnacy once they find out there is problem with the child. That thought never crossed my mind. I am so glad I gave her a chance to live. She lived 16 wonderful months. I spoke with my mom on Monday and we just talked for a while about Stephanie. She was such a special little angel. I do thank God everyday that I got to spend the time with her. Take care. Please know that I am here if you ever need to talk. Mindy 
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