What is Trisomy-18-Edwards-Syndrome
Trisomy 18 or Edwards Syndrome (named after John H. Edwards who first described the syndrome in 1960) is a genetic disorder. It is the second most common trisomy after Down Synd...
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Saturday November 28, 2009
More »MEMBERS IN NEED
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I went to see my Grandad last night with my mum and sister and it was awful.
He's just lying here drifting in and out of sleep, i dont think he even knew who we were. My mum said on the way home that she thinks he's giving up now and is only trying to hold on to see my sisters baby being born.
I hate this so much
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2 Comments
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More »INSPIRATIONAL STORIES
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My first entry ever.
I will tell you my story of a remarkable child that broke the rules of a Trisomy 18 child.
She was born on Jan 3 1978. I had no clue there was anything wrong with this pregnancy other than the fact that I had passed my due date by 2 weeks and was going to have a C-Section. I gave birth to what I thought was a healthy 6lb 2oz baby girl that we named Jessica Anne. Back in t...1 Recommendation
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More »POETRY CORNER
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I WISH I WAS LIKE I WAS BEFORETHIS DREADFUL ILLNES...
jaimelc Dec 04, 2008
Thursday, December 4, 2008
I WISH I WAS LIKE I WAS BEFORE
THIS DREADFUL ILLNESS KNOCKED ON MY DOOR
I WILL FIGHT THROUGH IT I WON'T LET IT WIN
I WON'T BACK DOWN I WILL NEVER GIVE IN
I WON'T DROWN IN TEARS OF SORROW
I WILL LOOK FORWARD TO A BRIGHTER TOMORROW
I WILL CHERISH THE SUN AND FORGET THE RAIN
I WILL BE ME ONCE AGAIN
I WILL FIGHT THE GOOD FIGHT
FOR THIS AIN'T THE END
I WILL NEVER BACK DOWN
I WILL NEVER GIVE ...3 Recommendations11 Comments -
TIME SLIPS AWAYDAYS GO BYBUT NO MATTER WHATGOD IS ...
jaimelc Mar 08, 2009
Journal Entry for March 8, 2009
Sunday, March 8, 2009
TIME SLIPS AWAY
DAYS GO BY
BUT NO MATTER WHAT
GOD IS BY OUR SIDE
HE GIVES US STRENGTH
HE MAKES US STRONG
HE GIVES US HOPE
TO CARRY ON
WE ARE NEVER ALONE
HE IS ALWAYS NEAR
HE GIVES US COURAGE
TO FACE OUR FEARS
HIS EVERLASTING LOVE
MAKES US FEEL SECURE
IT WILL BE WITH US ALWAYS
AND FOREVER MORE3 Recommendations5 Comments -
DAYS GO BYTIMES SLIPS AWAYLIVE LIFE NOWLIVE FOR TO...
jaimelc Feb 18, 2009
Wednesday, February 18, 2009 |
DAYS GO BY
TIMES SLIPS AWAY
LIVE LIFE NOW
LIVE FOR TODAY
TOMORROW ISN'T PROMISED
IT ISN'T GUARANTEED
SO MAKE EACH MOMENT COUNT
LIVE OUT YOUR HOPES AND DREAMS
CHERISH EVERY MOMENT
MAKE YOUR DREAMS COME TRUE
PONDER EVER SECOND
GOD HAS GRANTED YOU
MAKE THE MOST OF EVERYDAY
DON'T LET OPPORTUNTIES PASS YOU BY
LIFE CAN BE LOST IN A FLASH
WITHOUT AN ANSWER AS TO WHY
EVERDAY THAT WE EXIST
IS A BLESSING FROM ...1 Recommendation6 Comments -
AS PRECIOUS AS LIFE ISLIVE IT WHILE YOU CANAT ANY ...
jaimelc Feb 28, 2009
Saturday, February 28, 2009 |
AS PRECIOUS AS LIFE IS
LIVE IT WHILE YOU CAN
AT ANY SECOND
IT CAN SLIP THROUGH YOUR FINGERS LIKE SAND
IT'S A VERY FRAGILE THING
DON'T LET IT SLIP AWAY
MAKE EACH MOMENT COUNT
LIVE LIFE TODAY
LIVE OUT YOUR DREAMS WHILE YOU CAN
TAKE A HOLD OF LIFE'S HAND
LET IT GUIDE YOU WHERE YOU WANT TO BE
IN A WORLD OF LOVE ,HAPPINESS ,AND PEACE
FOR LIFE IS LIKE AN UNFINISHED BOOK
LOTS OF STORIES STILL NEEDED TO ...1 Recommendation1 Comment -
EVERYDAY WE AWAKEEVERY BREATH THAT WE TAKEIS A BLE...
jaimelc Feb 20, 2009
Friday, February 20, 2009 |
EVERYDAY WE AWAKE
EVERY BREATH THAT WE TAKE
IS A BLESSING FROM ABOVE
AS HE GRANTS US WITH HIS LOVE
HE IS THERE IN TIMES OF SORROW
HE WILL LOVE US UNCONDITIONALLY
HE WILL GUIDE US THROUGHOUT LIFE
AS WE CONTINUE ON OUR JOURNEY
HE IS THERE IN TIMES OF NEED
HE IS THERE FOR ETERNITY
HE IS THERE WHEN WE NEED HIM MOST
ALWAYS THERE FOR YOU AND ME
HE WILL GUIDE US THROUGH THE BAD TIMES
HE WILL GRANT US WITH THE GOOD
HE...1 Recommendation1 Comment
Thursday, December 4, 2008
I WISH I WAS LIKE I WAS BEFORE
THIS DREADFUL ILLNESS KNOCKED ON MY DOOR
I WILL FIGHT THROUGH IT I WON'T LET IT WIN
I WON'T BACK DOWN I WILL NEVER GIVE IN
I WON'T DROWN IN TEARS OF SORROW
I WILL LOOK FORWARD TO A BRIGHTER TOMORROW
I WILL CHERISH THE SUN AND FORGET THE RAIN
I WILL BE ME ONCE AGAIN
I WILL FIGHT THE GOOD FIGHT
FOR THIS AIN'T THE END
I WILL NEVER BACK DOWN
I WILL NEVER GIVE ...3 Recommendations11 Comments -
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