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These questions are research-related. Pure curiosity. I would love to hear feedback, please. I should also say: I understand the following statements and questions are controversial. But in my eyes, they are valid and necessary in understanding this disorder.
Here goes:

I have a number of questions concerning trichotillomania, specifically: what prevents us from stopping. Why can't we stop pulling?
I understand fully that every individual is unique in terms of their biological makeup - certain individuals are more prone to certain behaviours i.e. pulling. However, to what extent does the biology control our actions? Do we have complete control of our actions? I like to think we do.
The use of physical barriers to prevent pulling (hats for instance) must surely stop the behaviour. The creation of such a powerful addiction takes time to form. From the initial action, good feeling which is produced and subsequent repetition - to the biological, psychological 'urges' produced, takes time. Some people develop trichotillomania at the age of around 16 / 17 - do they consider their actions? At this stage - they should recognize their behaviour as unusual and strange. They should also be capable of recognizing the effects both on themselves, friends and family. Having a child ‘self harm’ can be hugely draining on a family – leading to anxiety on their part. I would expect (especially if the family has noticed and is trying stop prevent them) them to feel inclined to stop. It definitely demands concentration, motivation and control. I have resisted every temptation to pull for the last 3 weeks. I guess I came to the realization that the behaviour and subsequent effects would, in the long-run, exacerbate any feelings of self-loathing, stress and anxiety. In addition – the entire concept was unfair on my family. I felt guilty. As I should have felt. It wasn’t fair. I was being selfish. It would lead me to have a total lack of control – I would be weak. My biology would determine what I do. I figure this is a scary thought – the reason I’ve never smoked a cigarette. The reason I was able to resist is simple! I wore a balaclava. An example of a physical barrier. There was no way I would be able to pull – every time I reached, I would realize and I would stop. Because I wanted to. Sure, it took tenacity. But when I want something – I work for it. And I get it. I wanted this – this freedom – this complete control. I got it. So – when people say they’ve ‘tried every possible treatment’ and nothing’s worked. I find it hard to believe that their hands ‘bypassed’ the brain, removed the barrier and pulled. Without the ‘sufferer’ noticing. I question therefore how badly people want to end this behaviour. I am proof that you only need tenacity, will and perseverance to reach your intended goal. Why can’t others? I’ve realized – although it’s taken a while – that there are other ways of ‘freeing’ your negative feelings.
I must also question social and environmental impacts of trichotillomania sufferers. Internet ‘chatrooms’ and other social networking sites along with the NHS in England, brings together people with similar issues. The prevalence of those suffering from trichotillomania is extremely high in regions of the world with such support systems. Therefore – is the intended aim backfiring? In a normal situation, when a child develops a behaviour that doesn’t coincide with society’s values – they get bullied. It gets noticed. The child then learns to adapt their behaviour to fit in. That’s human nature. And it works. Also, evolution supposedly 'knocks off' unproductive behaviours - the idea behind 'healthy-looking individuals having a higher probability of finding the ideal mate' is contradicted by statistics today. So, does support in fact perpetuate certain behaviours by creating in-groups for those suffering? An in-group is defined as: a social group to which a person psychologically identifies themselves as a member. Similarities are found. For many trichotillomania sufferers – the similarity is huge as the disorder has an incredible effect on their lives. Therefore – is there not an element of normalcy which has been created? Would this not effectively ‘ok’ the behaviour. It’s normal that when others do as you do – the mind automatically labels it as normal – to a certain extent. I wonder whether this is happening.
I have a good friend I’ve known for several years. She’s nearly bald. I’ve never seen her try and stop. No barriers, no distractions, no counselling, no nothing. Due to stress – it’s got worse. She can’t go 1 minute without touching her hair – in addition she never talks about it. I question why. Why she makes NO attempt at stopping. This ultimately suggests to me – she’s accepted it. That because she has an addictive personality and has ‘urges’ that there is no hope in trying? That she’s given up. I find the entire thing rather traumatic. This, in turn – makes me angry. I care about her – but see a lack of effort and thought when it comes to her actions.
I wonder what your thoughts are – do you think it’s entirely biologically determined. That when you develop such a compulsive disorder – that you have NO control whatsoever. Or is there an element of ‘effort’ lacking.
Thank you for taking time to read this.
Posted on 07/30/12, 07:39 pm
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Reply #1 - 07/30/12  10:28pm
" I understand what your saying. I wonder this myself also. When we do pull and we know we are doing it why cant we stop?? Why do we just keep on doing it with no fear. The fear and anger sets in afterwards when u look in the mirror and notice how much hair you pulled out.

I also heard that we really cant help it that we pull. Its like theirs something in our brain that is not "wired" correctly and we pull to help our anxiety. "
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Reply #2 - 07/30/12  11:40pm
" FunBunny,

First of all, welcome to the site. We are always happy to welcome in a new member to the community!

Next, i'd like to address your post. On some level, i totally agree with you. And we definitely need a wakeup call like yours once in a while to remind ourselves that we do have the power to overcome this.
Speaking biologically, I will tell you that based on my own family experience, it is definitely genetic. My mom has it, my dad has it. My brother has it, and I have it. (I have the most intense form... the others all mild- and one of my brothers does not have it). Anyway, there definitely seems to be a genetic predisposition to this disorder. That's not to say that it acts the same way as any other genetic "disease". We do have some element of control over it (if we have the energy to put in the effort at the given time).
Trich doesn't spread throughout our bodies like a tumor. We have the power to stop (and by the way, I am working right now in cancer research, and trying to bring that ability to suppress into cancer as well! Woohoo!!). I like to think of it less like a disease or cancer, and more like alcoholism or any other type of addiction. You cannot deny your body's physiological dependence on the drug in question. But you also cannot deny that the only real way to stop drinking or taking the drug is by putting in your own effort.
Can we put out own efforts into becoming "clean" of the "drug"? Absolutely! Do we fail sometimes? Absolutely. Does that make us stronger? You bet.
Can we put blame on the others who just can't seem to pull it together enough to try and stop? I don't think so. We can help and show support as much as possible, but we cannot place blame. We cannot be angry at them. This is their battle, and it is their choice, and their struggle. Can we be frustrated? Of course. "
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Reply #3 - 07/30/12  11:49pm
" (sorry I just wanted to post that before I lost it or something)

Cont.

Regarding the support group issue, I also see your point. I see that the more we are exposed to others with this disorder, the more likely we are to just give up because we know it's so hard for everyone else, why should I be different?

But I think we are gaining a lot more with support groups than losing. The support and validation cannot be found anywhere else. It is the sole reason I was even able to realize I had the power to gather strength and put in my own effort. It was the sole reason (of course with the help of G-d, align the whole way) I was able to continue being pf for almost 3 YEARS now (august 28th). The support from my friends and family here. The constant "hug"s, "encouragements", and messages really helped me along the whole way. These people are my inspiration, my support-network, my family. Despite the fact that when I talk often about pulling, it gives me bigger urges than I would have otherwise, I am wiling to say that it's soooo worth the risk. You'll see. Just give it a couple days, and you will just see.

Welcome to the family, FunBunny.

I'm sorry to hear about your friend. it must be really tough for her, and of course for you too.

-Cake "
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Reply #4 - 07/31/12  2:43am
" I think for each individual the motivation for pulling is different. From a biological perspective, I think the same is true. While the manifestations maybe similar the 'brain kinks' aiding the disorder may be different. There most definately are biological underpinnings and predispositions with this disorder. Like with any challenging trait though this is not an excuse to avoid working on improving it. We wouldn't say an individual who has a family trait of anger, has the right to throw chairs. On the other hand I would not say that because one individual is able to completely stop, it is a predictor of the ability of another to stop. An individual's inability to stop is not necessarily indicative of putting less effort into stopping! Some describe pleasure with pulling and that in itself would seem to me to make it a much more difficult habit to break. Yet someone who has no pleasure from pulling may find it equally difficult because replacing it with something else pleasurable won't work. Recognize also that it is not always possible to put a physical barrier in place to stop the behaviour; what should lash and brow pullers wear in public, goggles? Even in private can one function well wearing them?

I can however relate to your comment of groups normalizing the behaviour and with some groups (not ttm necessarily) I have seen it as a way of supporting maladaptive behaviour in eachother. I would like to throw another idea in the arena in relation to groups. Since groups have a wide variety of types of pullers, this may actually be traumatizing to individuals at both ends of the spectrum: those who have a more controlled form and those who are suffering from a severe form with debilitating psychosocial and emotional affects. Each group has a different set of challenges and while empathic to eachother, mixing the two may not necessarily have the desired positive influence. Normalizing one to the other just does not seem fair, yet mixing does not seem productive. That being said though, I find that focusing on the behaviour to work on it, can have the same negative impact. While excessive focus on it highlights the maladaptive aspects, belonging to a group may normalize it. While it is a tight-rope walk to have an equitable balance between these two, I think one really complements the other and both may be necessary to maintain pf status.

There is another twist here as well and that is thinking patterns and personality. This may be a large part of why some are able to become and maintain pf status while others struggle constantly making little headway. I think that dealing with mistaken beliefs (CBT) or negative thinking patterns may change an individual's frame of thinking so they can as a whole cope better and have confidence in maintaining lasting results.

I think the great news about participating in a support group is that it is a way of acknowleging that pulling is a problem. Many are too ashamed to even admit that they do this. The other great thing is everyone understands and cares; that is the kind of help you may never get elsewhere - including from professionals who may have never walked in the same shoes. "

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