What is Tourette Syndrome Tic Disorders

Tics are sudden, repetitive, stereotyped, nonrhythmic, involuntary movements (motor tics) and utterances (phonic tics) that involve discrete muscle groups. Tourette syndrome is one...

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Discussion:
tourettes and sleep problems
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My seventeen year old son has ts and was diagnosed at 10. He has a terrible time sleeping and is constantly exhausted. He isn't on any medication except Lexapro so we cant blame meds for tiredness. He can't sleep at night and is in bed very late. He feels that he never gets any deep sleep but is half asleep all night. Of late he seems worse than ever and of course less sleep, more stress and more tics. He works 15 hours at week and even getting him to that is becomming difficult. I was wondering what you all do to get to sleep and if you have discovered anything that helps. How do you deal with the terrible tiredness that comes with ticcing. Thanks in advance. Karen
Posted on 11/03/09, 08:11 pm
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Reply #1 - 11/05/09  8:44am
" I would talk to your doctor as no sleep also brings on depression and other behavioral things as well. My son who is 8 also has trouble settling his tic at night. We tell him to lay in the same position each night, tic when needed and then reposition. We have practiced deep breathing and slowing things down to get the body ready to sleep.

Some night are not great even with his routine in place, so we lay with him. I realize an older child wouldn't like that but what we do is drape an arm around him for pressure. He clunks out pretty soon there after. Has he tried any type of pressure: heavy blanket?
Sometimes the pressure also helps the body relax.

I think too going to bed so late also feeds it, he's over-tired when he attempts sleep or passes out from exhaustion. They do have sleep clinics as well that may help sort this out. Good luck! "
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Reply #2 - 11/05/09  1:36pm
" My son uses melatonin to help him get ready for bed. IT is a natural sleep aid. "
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Reply #3 - 11/05/09  9:51pm
" thanks for your reply. We have been to sleep clinics and they have reported that they see nothing unusual in his sleep patterns, however they do acknowledge the difficulties he had getting to sleep. At eight, we didn't have any sleep problems they have gotten worse with age and with an increase in his tics. I suspect his adhd brain is also keeping him up. As he says his mind is very active at night and wont let him sleep. I have sugested and tried all sorts of things for him to do, but nothing seems to work. We have tried medications but then he has the zombie effects the next day. I havent tried the heavy blanket yet, it is very hot in queensland and he probably wouldn't cope well with something heavy on him. Seems like we can't win. Thanks for your suggestions though. "

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