What is Thoracic Outlet Syndrome
Thoracic outlet syndrome (TOS) consists of a group of distinct disorders that affect the nerves in the brachial plexus (nerves that pass into the arms from the neck) and various ne...
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re: John Hopkins visit Dr. Julie Freischlag
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Hello,
I am new to this group and have been diagnosed with thoracic outlet syndrome. My doctor here in Florida wants me to travel to John Hopkins to see Dr. Julie Freischlag. I was wondering if anyone has been to her and could tell me what their experience was like so I would know what to expect. Thank you. Posted on 07/27/09, 09:07 am |
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Hi Joiedevivre,
I also have TOS, along with PSS, which is Paget–Schroetter syndrome. My situation is a long story. I will not bore you with it as Im sure your pain is equal to mine. Im writing to stay on topic. I am trying to see Dr. Julie Freischlag as well. I have little time as I am concerned about losing my job. My surgical team in Orlando has recomended rib resectioning, however I have permanent vein damage, so the results may or may not be good. My Dr. (Dr. Patel) gave me Julies name and recommended her. Do you have an appointment yet> If so, how long did it take you? Please feel free to write to me at anytime. And please do keep me posted on your progress. Thanks, Paul OrlandoAuction@Gmail.com 
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