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Discussion:
after TOS surgery.
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I was diagnosed with TOS in 2007, after almost a year and a half of running around with different doctors, I found a great doctor in New jersey who actually knew what I had and sent me to do all the necessaries tests to make sure that I had TOS, sadly it was too late and I had a chronic case of TOS. we started to get authorization to have a surgery and it was done in Boston Massachusetts General Hospital in 2008, I cant say that I am 100% ok but I am much better than before. I had my first rib removed and my scalenous muscles removed too. it has been really hard for me because I am single mom and I had lost everything that I had, but I am proud and bless to say that I am here and I hope with all my heart that I could help others with this syndrome.
it is not easy, but with the right information we can make it!..
Posted on 03/24/11, 12:50 am
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Comment:
Email me when others reply to this topic help
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Reply #1 - 05/13/11  12:12pm
" Thanks for the post. I was recently diagnosed with TOS. It has been 3 years of dealing with the pain. I am scheduled for surgery in a couple of weeks. Do you have any tips or suggestions on how I will feel after surgery? I an a bit nervous. "
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Reply #2 - 05/17/11  12:56pm
" I have read so many negative responses to this, I am not so afraid, to get the surgery. However, I have had this pain, for 5 years, and in the last 6 months it has gotten so bad, that I can't do anything I used to enjoy.
I am seeing the chief Thoracic Surgeon in Baltimore's Good Samaritan Hospital, and I don't know to believe. "
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Reply #3 - 08/02/11  6:31pm
" I also had Dr Karass
Do my surgery, I am recovering from my second surgery now. How did everything go for you? "
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Reply #4 - 08/03/11  9:24am
" Loved your post......I too was advanced and had my rib resections done at MGH. I still can't practice dental hygiene but have learned to cope and live a little...most of the time anyway. For me the more I do the worse my pain gets. So I have to pick and choose my chores & activities and plan on down time afterward. Coping is a huge part for me as I am still mad I got this...lost my career and can't do things without paying for it later. This TOS is a life changer... a true disability but this site helps...just knowing I am not alone can help when feeling depressed. Yes... we can make it and it could always be worse. Volunteering helped me realize that. "
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Reply #5 - 02/05/12  11:46pm
" As an 18 year old tennis player I have had TOS for 2 years, and as i was recruited for college tennis I knew I needed to take drastic steps for improvement. I scheduled surgery, and went through with it a month ago. I had every complication there was imaginable. From lymphatic duct leaks, to having a chest tube put in, it was a nightmare. I had a first rib resection, scalene muscles removed, and surgery on my pec minor. I was in the most competent hands but there are many risks with the surgery. I spent 9 days in the hospital, on constant pain medication, nothing ever seemed enough, and they were constantly increasing my dosages. Looking back on it, I wish I had spent more time on my physical therapy. While receiving treatment I continued to play tennis almost every day, or do some workout routine. Whatever you do, do every single exercise they tell you, and do it religiously. I looked at this surgery as a last option and a fix it all, but it is an extremely serious thing to go through. I know I got more than most people have with this surgery, but sitting in a hospital bed helpless for 9 days is something I would never wish upon anyone. Take it from me, someone whose been through it all, DO THE PHYSICAL THERAPY AS BEST AS YOU CAN! I am approaching a month since the day of the surgery and I am still feeling the pain, and I cannot even start the recovery of physical therapy since I have not completely healed yet. I have many months of hard work before I can even think about picking up a tennis racket or even living normally again. If you have any questions please let me know, and I will gladly answer everything. As a side note I was left with an $85,000 hospital bill, without doctors fees ($30,000 just in medicine costs) "

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