Syringomyelia Support Group

Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.

224 Members

427 Posts

0 Online

New Post

I'm new here!

Posted by: Morning_Glory1

Last Reply: 39er 03/04/2023

3

I had a workup 4 years ago for MS, including MRIs of my brain, C-spine, and thoracic spine. MS was ruled out but a... READ MORE
Syringomyelia and rehabilitation

Posted by: GabrielaG

Last Reply: christopherwatkins 03/06/2021

2

Hello, I´m new here and I´m from Slovakia. My husband, 34 years old, was diagnosed syringomyelia in June 2018 with... READ MORE
Thoracic syrinx

Posted by: heatherdooo6

Last Reply: AdrienneMC 11/21/2020

4

hi all,i had a burning sensation around my shoulder blades about 3 yrs ago now. This prompted me to go to the... READ MORE
Teenager suffering with symptoms!

Posted by: robert71303

Last Reply: AdrienneMC 11/21/2020

3

Hi guys, I'm an 18 year old male suffering with a small syrinx from C6 to T1 and this is really taking it out of... READ MORE
C6-C7 syrinx

Posted by: Tom.w

Last Reply: AdrienneMC 11/21/2020

7

Hi,Im a 33yr old male. Just over a year ago I felt like I was coming down with an illness and felt run down like my... READ MORE
Soul Cysters

Posted by: FourLegz

Last Reply: DanielleNYC 11/17/2020

1

Hi all. I'm a 44 yo with a syrinx from my T2-T-10 which is gradually growing. I had difficulties getting diagnosed and... READ MORE
Any Help or encouragement

Posted by: Kimmi057

Last Reply: heatherdooo6 07/22/2019

1

Good Morning All, My son is 26 was having shoulder pain for about 6weeks MRI has reveiled several of these Syrinx.... READ MORE
Living with Syringomyelia

Posted by: HopefulinLouisiana

Last Reply: HopefulinLouisiana 04/11/2019

3

Hello ~ I’m new here. I’m married and have 5 kids. My kids are in their 20’s except for a 16 year old. I was hit... READ MORE
Is Surgery the answer?

Posted by: deleted_user

Last Reply: kasuma 07/25/2018

9

Hi there, I'm a 30 yr old wife & mother of 3, I found out about my syringomyelia about 1 1/2 yrs ago, after... READ MORE
C5. TO T11

Posted by: Vesves

Last Reply: scottishcaz 07/20/2018

1

First of all I'm sorry any of us has to go through this.I just recently found out that a syrinx they found 4 years ago... READ MORE
Syringomyelia

Posted by: Cordelia95

Last Reply: littlevegan 05/05/2018

3

Hi, I'm a 22 year old girl. I've been having weird symptoms for months, numb patches on back, fingers, and can't feel... READ MORE
Recently diagnosed

Posted by: Noluck2017

Last Reply: Noluck2017 02/20/2018

5

Hi, I've been having back pain for a few years now. Started with pain zinging down left leg and stopping at knee.... READ MORE
Cognitive and facial symptoms

Posted by: Tom.w

Posted: 01/30/2018

0

Does anyone with syringomyelia without chiari have any facial symptoms like numbness or twitching or any cognitive... READ MORE
Information please!

Posted by: stevenveteran

Posted: 01/08/2018

0

I wanted to know if anyone can help me to ascertain in particular from the bottom finding impression from an MRI I had... READ MORE
I am also new here

Posted by: mirjana

Posted: 12/22/2017

0

Last year my daughter aged 13 had spinal cord tumor operation and the doctor said that her problem now is... READ MORE