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new bill in dc for funding
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there has been a bill introduced into congress for more funding for sma research and treatments. i have letters requesting that your local representative and senators support this bill that i can email to anyone interested in sending them to help the cause. send me a message with your email and i will forward them to you. i have them in microsoft works format.
Posted on 09/01/07, 10:33 am |
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I would love to have a copy of those letters to send to our representatives here in North Carolina. thank you
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GO HERE AND SIGN THE PETITION..
http://www.petitiontocuresma.com I ALREADY SIGNED I HOPE U ALL WILL TOO. MELISSA
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I to have signed the bill. If you look under families of SMA children you will see petition online. Our goal is now 50,000 signatures and we can do it!!
I am a grandmother of a SMA type 1 baby who is now 6 months old. Lorelei will need a G tube for feeding put in this month. She has still some movement in her arms,hands and can wiggle her feet. What is a concern to us is her breathing. We are going to be getting a suction machine soon to help her sleep at night. God bless us all and give us all courage in these hard times.
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please add me to your list
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I would love to have a copy of those letters to send to our representatives here in North Carolina. thank you

