What is Spina Bifida
Spina bifida is a Latin term which means "split spine" and describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malfor...
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transportation and getting around?
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I am a student nurse researching SB for a project. I have read that many with SB use crutches, braces, and wheelchairs. I was wondering if anyone with SB has had issues with getting around, for example schools, stadiums, campuses, store, buses, or certain cities in general? I have heard that now places are more accessible but are they really?
And also somewhat unrelated to this topic what are common misconceptions about SB that you would like to set straight? Posted on 11/10/09, 03:11 pm |
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the biggest misconceptions i deal with are
Everyone assumes i cannot walk or i have braces or crutches the truth is i have none of the above i walk without any aids and i have never required any type of aid some people assume that i have a shunt again i do not nor have i ever required one hydrocephalus never occured with me People think SB is a disease and that is contagious People think that my mother did something wrong and thats why i have SB They also have said things like "If she had taken more folic acid during the pregnancy..." HERES THE TRUTH My mother was on FOLIC ACID and all kinds of vitamins she ate healthy and took care of herself since well before she got pregnant with me AND IT DIDNT HELP i was still born with SB 
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I think the biggest misconception is that disabled ppl in general and especially those who use wheelchairs for mobility are not sexual beings. When ppl discover that I am a lesbian they often start to say something about not knowing that ppl who r paralyzed II'm an incomplete paraplegic) can have sexual feelings.
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