Sjogren's Syndrome Support Group

I no how you feel,not only a sore tongue but heaps of mouth ulcers.
I would like some suggestions if anyone has any.

This might apply here:


This is an article out of my Moisture Seekers magazine.


"Q I frequently experience an intensely painful
burning and pin-prick sensation on my tongue.
Is this related to Sjögren’s? Is there any treatment?
A A burning sensation is a common oral complication of Sjögren’s syndrome.
The cause of a burning sensation/pin-prick sensation is frequently
related to decreased salivary flow associated with Sjögren’s. Lower
salivary flow will lead to decreased lubrication and subsequently more mucosal
(i.e. tissues in mouth such as cheeks, gums and tongue) irritation and
burning – especially with the tongue. As saliva has natural properties to fight
fungal/yeast infections, a decrease in salivary flow can also lead to an increased
risk of oral fungal infections. An active oral fungal infection
can manifest as mucosal burning. Other causes of
oral burning may be related to vitamin deficiencies, oral
allergies or autoimmune related oral lesions.
Successful treatment of oral burning requires the correct
diagnosis of the underlying cause of the burning.
Increasing salivary flow will benefit burning from poor
lubrication, and appropriate antifungal therapy will provide
relief for an active fungal infection. Appropriate
management can also be provided to supplement vitamins,
eliminate allergens or treatment of autoimmune
oral lesions.
Michael Brennan DDS, MHS "

Try taking folic acid for a few weeks, I have found this helpful when my mouth is sore.

i use hurricane gel from the dentist. it is thick enough to stay on the tongue and much better than liquid lidocaine. it also comes in cherry flavored. it works for me.

I also take folic acid daily and it works for me.

It is important to keep your mouth as moist as possible to prevent the mouth store. Keep some water by you. Eat a sour hard candy or chew sour gum. I find massaging the glands from bottom of ears to throat increase the saliva at least temporarily. Hugs Marilyn

I have had a sore tongue as well. Thought maybe I was just rubbing my tongue against my teeth at night. Oh hell, maybe I'll just try some KY on it. lol Just kidding. I have to laugh sometimes or I would cry instead. You guys are wonderful. Love, kristy

No sore tongue for me, but I do get mouth ulcers that are very painful. Any ideas on how to stop getting these??