What is Sjogrens Syndrome
Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It is named after Swedish ophthalmologist H...
Join Now
|
New Member looking for friends and education
|
Watch this |
| View More Posts Ignore |
I believe I have had Sogren's for some years now but is taking me too long to get the DX. All the symptoms I have keep getting larger. Would like to trade information ideas with anyone who has time.
I live in Iowa. EmyrldEyes2 at Snofyre@aol.com THANKS!! Posted on 10/25/09, 03:10 pm |
| 6 Replies | Add Your Reply |
| View More Posts Ignore |
Hi Emy welcome to the group. It took years for them to reach a diagnosis of sjogrens on me. Do you have a good Rheumatologist? Mayo missed my diagnosis and I went years without treatment before I found a good doctor.
I lived in Iowa for awhile so I know how challenging it can be if your not close to one of the bigger cities. Again welcome to the group Deb 
|
|
|
|
||
| View More Posts Ignore |
Welcome!
Read through the forum we have some good information just here. You must get diagnosed so you can get your symptoms under control. Blood work and good rheumy are the start In reverse order of course. Post what's bugging you and maybe we can tell you how our situation went. Most of us have taken the long DX route....me almost ten yrs. Again welcome aboard the SJS forum.
|
|
|
|
||
| View More Posts Ignore |
Hi Emy, I was very fortunate in that I am a nurse and knew a very little something about autoimmune disorders. I was shocked to find out that I had Sjogren's though. I did not have the classic dry eyes and mouth. I have it off and on now but still is not the problem for me as it is for others. Fatigue is probably the worst thing. Not being able to plan has been hard and have not been able to work since March of this year. Started to get "sick" at the beginning of the year and had a dx by June. If we would have done an ANA sooner we would have had dx sooner. Took me over 2 months to see a rheumatologist. I live in a small town and the Dr in the closest city is very busy. This group is a blessing to me. I have learned so much from them and they have given me great comfort in my time of need. God bless you and may you get your dx soon. Pam
PS I am from Il origionally. Live in Co now!
|
|
|
|
||
| View More Posts Ignore |
Welcome to the group
I'm still learning about this since being DX'd recently too but I have overlapping problems with SLE/MCTD and RA so they just added SS to that list along with hypothyroid too...symptoms come and go with fatigue being more pronounced some days or severe joint pain on other days...symptoms tend to migrate too...then add in the fact of having reeeeeaaally moody days....sometimes I feel like a jack-in-the-box with Dr. Jekyl & Mr. Hyde syndrome...LOL...but now been on plaquenil for a few months and thyroid meds for a year many of my symptoms have either disappeared or at least lessened somewhat... Hang in there!!Things will improve for you!!!
|
|
|
|
||
| View More Posts Ignore |
I think I had sjogrens for a long time befrore being diagnosed. With nme I have a lot of muscle pain too and voice is often very hoarse, I also have mctd and lupus. hugs and welcome. Lots to learn on here.
|
|
|
|
||
| View More Posts Ignore |
Welcome to the group. I was borderline with the ANA tests. I have Hashimoto's disease (autoimmune) and that always shows up positive on the ANA tests. But after I was getting worse and the fatigue was so unbearable my rheumy started testing deeper.
I was finally dx with Sjogren's and am still borderline for Lupus and RA. So she is just sticking with the one dx. I hope you get some answers soon. Take care! Hugs!
|
|
|
|
||
| Add Your Reply |
