What is Sensory Integration Disorder
Sensory Integration Disorder is a neurological disorder causing difficulties with processing information from the five classic senses (vision, auditory, touch, olfaction, and taste...
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Adults w/ SID What Challenges...
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Do You Face?
As an adult with SID I was wondering what are some of the toughest challenges (good or bad) that you have while trying to cope as an adult w/ SID? For me some of the challenges are: trying to keep up job performance in the working world and when in I was in school the academic world, especially since a lot of visual spatial skills are used and needed in everyday life. the constant emotional highs and lows that go w/ SID from being over stimulated or overwhelmed.The visual stimulation is especially the hardest since my eyes are very sensitive especially to light and tend to close and shut down so to speak from so much visual input. there's no SID icon neither in the media nor in Hollywood that I know of so as adults there is no role model or major magazine for us aside from a few books. some people don't understand that unlike a faucet. I can't turn emotions or symptoms SID off when I feel overwhelmed or like I'm going to blow a gasket from too much stimulation. trying to overcome dealing w/ "surprise touch" since just about every non-SID adult I ever met doesn't understand how surprise touch especially when approaching me from behind, makes my skin HURT because their hands are like sandpaper. The same goes for my head and hair since I can't stand those being touched either. that although I do like fashion, my wardrobe has to be mostly plain and simple like cotton or denim b/c certain fabrics make my skin hurt as well as the busy patterns of most shirts or outfits that I'm not really clumsy or a klutz, just because I bump into things or people constantly or trip over things a lot. SID just makes spatial awareness a constant challenge. The same for being crowded(which I can't take either) or accidentally bumped by people. Lastly, The positives are: Doing yoga since it helps w/ balance and coordination Being able to take an "emotional time out" by going to either the library which is quiet or for long walks and discovering a quite a few neat looking birds that are around this time of the year. Being able to feed the ducks before they fly south for the year. Learning to knit, which is especially helpful in the winter when I can't get out to take a walk. That despite having SID, I'm still a loving and caring person. I just have a neurological road block that likes to stand in my way :D Posted on 08/27/09, 10:08 pm |
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I am 34 years old and diagnosed recently, my condition is more degenerative and I have developed SID over the past 3 years. I have spatial and balance issues. Coping... thats tough. Adults "forget" about what is going on with me even when I remind them. I make the best of it even when I knock everything over all day long or bump into people. I usually make a joke, sarcasm, wit or charm to "make light" of what is happening. I take alot of walks on a wide sidewalk by the river where I live too. I have a 4 yr old boy and a 15 yr old girl and it is difficult at times to calm myself. They are both a handful emotionally. They don't know or understand mom at times they are just being kids. I just maintain a patient loving heart at ALL times with myself and others. I think it is just that it is having to remind people all the time is the hardest and most exhausting part. Sometimes I cannot even identify what is going on until it has passed.
Not that I would wish this upon anyone, but it is nice to share this with another adult. thank you for sharing!!! Jen 
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Thanks for the reply Jen and welcome :D
I was 26 when I was diagnosed and I feel the same way you do. I agree, I think that reminding adults all the time that being an adult w/ SID still has A LOT of challenges, especially emotionally, is exhausting. For me I hate how adults assume that you can just "shake off" the symptoms so to speak and out grow SID, which of course isn't true. I still battle a constant emotional rollercoster when trying to calm myself too at times. I know what you mean about spatial problems. I have the same issues too and also oral, visual, hearing and tactile defenses. OT and PT have helped some w/ these issues but its still hard. Also, thanks again for sharing. I agree, its really nice having another adult to share w/ too :D
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