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Discussion:
ana pattern
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does anyone have nucleolar pattern ana??
thanks,
sharon in washington
Posted on 06/30/07, 03:50 pm
17 Replies | Most Recent Add Your Reply
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Reply #11 - 06/05/09  11:02am
" Mine has become worse over last year but had symptons longer. lupus sclerederma crest sjogrens Ra and raynauds. I have a lot of symptons now thanks for explaining the tests so well. hugs marilyn Also have scarring on lungs now with shortness of breath and stomach problems "
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Reply #12 - 10/07/09  3:50pm
" Dawn, autoimmune disease is certainly know to cause depression. That doesn't mean you don't have autoimmune disease though! With all the things you have going on, I'd say if the doc implies it's all in your head, the fire the idiot! "
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Reply #13 - 11/14/09  3:45pm
" I had an ANA of 1280, then I requested my doctor run the anticentromer, it came back +4, but my doctor said it didn't prove I have scleroderma. I suspect I do, because of SOB, mild cardiomegaly, digestive problems, including GERD, pain in muscles, neck, headaches in back of head, tingling in hands and feet with burning, swelling in joints of hand, and brown patches and very dry looking skin on right arm and left foot, small amount of protein in urine. I see him again next month, is there a specific test I should ask him to run to get a more definitive diagnosis than MCT? It doesn't appear that there are any scleroderma specialists in Florida. I hesitate to go to a dermatologist for a skin biopsy, my skin already looks bad with a lot of permanent white scars from routine burns and other injuries. I'm just overall sick and so tired. I don't feel sorry for myself at all because I feel very lucky to have made it this far in life. I just want to know for my family's sake, the genetics and all and what they may have to face. My daughter was just diagnosed with lupus, and her daughter was diagnosed with Stage IV lupus at 7. She is doing very well, she was treated at Gainesville and though she is not cured, you would never know she had it unless she told you. One odd symptom she had was that she lost all of her toe nails, probably from the cellcept.. I am so glad that I found this site, as I was suspecting that I have lupus and scleroderma, and from what I have read from others on this site, I see that is a possibility. "
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Reply #14 - 11/19/09  1:00pm
" Dawn mentioned "brain fog" as a symptom she has back in one of her entries. Does anyone have any info on that? I have been diagnosed with CREST (anticentromere very high, raynauds, GERD, telangiestasia in the form of spider/varicose veins, joint inflamation, cardiomyopathy/heart failure).

The symptoms that I have that I don't see on any websites are the ones that I'm wondering about. I feel like I am losing a mental edge at times--brain fog definitely seems to sum it up. Is that related? I also seem to be a magnet for any germ out there--I'm constantly getting colds! Is that common? I guess I really don't have a full understanding of this syndrome and I spend my days worrying and wondering...

--Jessy "
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Reply #15 - 01/08/10  11:23pm
" I had a positive ANA titer of 1:1280, speckled pattern and Anti Centromere B Antibodies >8.0, . I have been tested three times and it always comes back the same. I am developing more symptoms of Scleroderma now though. "
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Reply #16 - 03/18/10  8:35am
" Not sure if anyone can offer any advice, but I just had a positive ana of 1:2560 nucleolar pattern. They tell me it will be 4-6 months before I can get in to see a specialist here. I too suffer from brain fog, right arm pain, numbness, fells like hand is swollen - tight- , severe fatigue, most morning I wake feeling hungover, and my body feels like a thousand pounds. In the past 12 months I have been diagnosed with Graves Disease (remission) and celiac disease. t feels like everything is coming sown on me at once. When I told my endo how I was feeling he just shrugged his shoulders and said I was probably depressed because I had to change my diet because of Celiac. He ordered some regular bloodwork and when I went to get it done I ticked off the ana because I had tested positive last year (1:320 not too high). I didn't even bother to go back to my endo and saw my family doctor instead. He seems concerned but could offer no advice. Through research I have come up with Scleroderma. Is there anything else that I should look for ; symptoms, bloodwork etc.....I think I will go crazy having to wait so long to see a specialist. "
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Reply #17 - 03/18/10  8:44pm
" Yogabear,

I did forget to say that, yes, once I had a nucleolar pattern, but usually it's homogeneous or speckled, and once anticentromere. But lately it is the anticentromere B test that has been hugely positive.

Dawn4t, it sounds like you've been through the mill, just like me. And like you, I have no skin hardening or sclerodactyly yet, but just about everything else. It's easy to get depressed about it. And it's easy for people to think us hypochondriacs because they can't see the pain.

Actually, I may have to soon revise that part about no skin hardening. I have a darkened spot on my leg about the size of a nickel that's been there for two months. At first I thought it was a bruise, but bruises are only supposed to last for two weeks, not over two months! I suspect it will need a biopsy. "

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