What is Scleroderma
Scleroderma is a rare, chronic disease characterized by excessive deposits of collagen. Progressive systemic scleroderma or systemic sclerosis, the generalised type of the disease,...
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No one home here?
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I am suspected of having Sleredoma but each time I come to this community nothing has ever changed. marilyn
Posted on 12/16/07, 12:12 pm |
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I was told that Scleroderma is a rare disease. Approximately 350,000 people have been diagnosed in the US with it. I think that alot of people out there dont realize that there are places for them to go for support. I know it took me a long time to find somewhere to come and talk to others like me. Maybe that is the deal. 
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Yea should we advertise this forum discussion on other sites?
what online support is out there??? Should we contact the DOUG or whoever he is who runs the site about getting a premade letter...........(email) or banner with scleroderma in the middle along with dailystrength logo.... and mentioning other support communities win win?
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banner meaning like a "CLICKABLE"
internet billboard :) ... linked to sleroderma page on here :D
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i dont even have scleroderma
feel like i shouldnt be postin... but yea my cousin has it so.... THATS WHY... and someone needs to liven it up eh dallas... ;) so we gonna contact sites?
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anything would be worth a try JD. With 350,000 diagnosed with it in us wheere is everybody. I guess we need to get the word out. marilyn
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HEY
SOMETHING HAS CHANGED NOW Im here :D lol... well found a few sites with forums etc... go to the "where is everyone" thread for links :) cool
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The group is growing. I'm here now, too!
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