What is Sarcoidosis
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most oft...
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Hi all, Just wanted to introduce myself. My name is Cormac, and I was diagnoised with sarcoidosis some 10 years ago. It began when I was living in Oz. The heat and hardwork made me loose weight fast, I dropped about 5 stone, over a couple of months, and I began increasingly sick, I started getting night sweats, pains in my legs. I got tested for all manners of disease, nothing was found. I started sleeping when I came home from work, in a bog of sweat. I returned home, very thin. I thought nothing of it, and I went back to university, at the end of writting up my PhD, I started to sweat without reason, I got pains in feet and in my legs, I found it difficult to walk, and then one night I collasped on the bed, and my legs locked in spasim position behind my back, I never really cry, but I was terrified. I was diagnoised then, but only after all other diseases were rulled out. I then had three other experiences like this, then I created kidney stones, which I have has several. I have marks on my lungs, and when I get sick, even with a cold, I feel everything, all my bones ache.
About a year ago I decided to start running. I ran everyday, and little by little I gained in strenght, and the night sweats stopped. I have found running to be a great help, I have completed three marathons this year, and I feel much better than I have done in a long long time. I know we all experience saracoid in different ways, but there must be ways we can beat it together? Running may be an option? Thanks Cors Posted on 11/06/09, 07:11 am |
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Bunkie,
I was the same at the start, I did not have any energy. First, I began to jog, then walk and then jog and walk. I didnt get very far. It was slow start, but after about a month or so, it became easier. I set myself a time, like 15 mins, and ran for that time. It took me a while to get to that stage. I remeber coming out of the speacilist after reviewing my x-ray of my lungs, seeiing all the marks on the lungs, I was very upset, I thougth I was too young. I said 'im going running'. I stopped the car, changed and went runniing it was lashing with rain, but it was grear. I didnt want to let myself feel ill. I ran in rain, wind, snow, heat (which I can not handle at all). I run about four-five days a week. I vary between 5km-20km, depending on time. There are so many training programmes out there, but I would say this. Have a target. I want to run for 15 mins. Get to that target and keep going, and set a new target. I would also say, even a small amount of excerise will help. There is also the added feeling of runners high, which is when every problem disappears and you get a sense or feeling that you can do anything! Priceless feeling. For that alone, I would step on the road or treadmill and give it a go. I dont know what others might think, but going to doctor first might be an ok idea. Personally, I feel you can only do yourself good by running/walking jogging. Good luck, I am not super fit or anything. I am about 13 1/2 stone, just under 6 foot, I defo dont have a runners shape or anything. But when you start, all that worry of how you look, or feel on the inside goes, who become part of a community of runners, who are very supportive, and helpful, always have a kind word, a wave, a nod or a smile. Good luck, start slow and small, and you will be able for anything. Cormac 
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