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General Discussions   DailyStrength.org - Is it Retts?

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Is it Retts?
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My beautiful daughter is nearly 5 months old. I'm concerned she has Retts.

She was born with heart arrythima (SVT), has severe reflux and poor circulation. Since 8 weeks her weight gain has been very poor. Most concerningly, her head growth has greatly reduced since 8 weeks too.

Development is OK (so far) but I know it's early.

Should I push for a blood test? Did anyone's little one have early symptoms?

Many thanks
Posted on 01/16/10, 02:00 pm
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Reminder: This is a support group for Rett Syndrome. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
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Reply #1 - 03/16/10  12:12am
" My daughter has Rett Syndrome, we did not have signs until 9 months, each child is so different, follow your gut and heart. Talk with your pedi and tell them your concerns. Take care. "
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Reply #2 - 09/22/10  4:17pm
" We were told our daughter had it at 6 months old. She had all different signs for other stuff but, the ran this test due to she was rolling over and then stopped. She also had to head support. "
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