What is Rett Syndrome

Rett syndrome (Rett syndrome, Rett's disorder) is a progressive neurological disorder. The symptoms of this disorder are easily confused with those of cerebral palsy. The clinical ...

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Discussion:
Friends daughter has retts
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Hi, my friends daughter was recently diagnosed with retts and she's having a hard time finding a support network. It would be nice for her to have people to talk to who are in the same situation...does anyone know a support site or chat room that could help her? I want to help but I don't know that much, any advice or information would be welcomed. Thank you.
Posted on 02/23/08, 02:02 pm
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Reminder: This is a support group for Rett Syndrome. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Email me when others reply to this topic help
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Reply #1 - 04/13/08  8:10am
" hello, if you go to yahoo.com, you will find a section there on groups, just search for the rett group, they are a great help and will support your friend and help her with any info, i am part of the group myself and they are a great bunch of parents! "

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