What is Rett-Syndrome

Rett syndrome (Rett syndrome, Rett's disorder) is a progressive neurological disorder. The symptoms of this disorder are easily confused with those of cerebral palsy. The clinical ...

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Monday November 23, 2009

Rambling Stories

  • My Rett Angel

    Saturday, September 5, 2009 | A Rambling story

    Amy will be 19 in December. She has Stage 4 Retts. But she is the best sister anyone could wish for. Has life been hard due to her not being able to walk or talk? cant say that it hasnt but you learn to adapt to it and come together as a family. She became tube fed at 3. She also had to have the metal rod put in for her scoliosis. I guess my point or stating some of her medical issues is tha...

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