Renal Cell Carcinoma (Kidney Cancer) Support Group

Hi Gary,

My husband who has been fighting his mRCC for 7.5 years now has been on all the drugs you've mentioned. He had about the same success with Sutent. I have very good news to share regarding Nexavar. He took this over 2 years ago when it was still a clinical trial by itself and had the best of luck with it (over 1.5 years of shrinkage and stability). After it stopped working he tried other drugs, some clinical trials with moderate success of holding back the cancer. A couple of months ago, the drug he was on stopped working and his oncologist suggested going back to Nexavar to see if it would work again and BINGO...it is working again with shrinkage and all! This gives us great hope for the future, that we can circle back on these drugs....live with the cancer.

My husband's side effects for Nexavar are primarily, loss of hair, high blood pressure (controlled with medication), and extreme tenderness on feet and hands. We've learned that soaking the feet in Epsom Salt nightly and using a good cream to massage the feet helps greatly to prevent dryness and blisters. Also my husband can't do activities that cause pressure on hands and feet. But, the 2nd timre around we are able to control his discomfort much better.

I wish you the very best Gary,

Linda

Hello Linda,

Thanks for the update and encouragement. Sounds like your husband is a brave man. I hope to get started next week with the Nexavar or axitinib. They were going to randomize me today. I have not heard the outcome.

Also thanks for the Epsom Salt idea as I have had tenderness in the feet to the point that where I could not walk.

I appreciate the ideas, thoughts, prayers, and suggestions. I hope to fight it like your husband and live with the cancer. I just have too many things to finish with family and grandkids.

Cheers,
Gary