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General Discussions   DailyStrength.org - sutent

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sutent
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April of last year i had my right kidney removed (RCC)...November of last year 1 brain lesion removed and gamma knife follow-up in December....i am getting ready to start Sutent for my lungs , nothing big yet but multiple spots... just looking for a little support... i think my family and friends get tired of my talking about it , nobody says so but i sure hate that to talk so much about it...anyone used Sutent
Posted on 02/10/11, 05:52 pm
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Reminder: This is a support group for Renal Cell Carcinoma (Kidney Cancer). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 02/11/11  12:02pm
" My dad did and had good test results after using it! Side effects got the best of him and his life style though rash on hands and feet, thrush in the mouth and nausea. The doctor's took him off of it and changed chemo's and nothing else worked like Sutent. I hope it works for you! "
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Reply #2 - 02/11/11  4:10pm
" I totally understand the friend and family thing. I have stage 4 Chromophobe renal cancer. I had a nephrectomy in 09 and a thoracotomy in Dec 2010 for multiple chest nodes. Nothing in my lungs,yet. I to will eventually go on sutent but right now I'm in the holding pattern until something new arises.Kind of scary. My next CT is the end of this month. Stay positive and know drugs work differently on everyone. "
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Reply #3 - 02/11/11  6:59pm
" Sutent worked for my husband for about 10 months and then stopped. Side effects were not bad at all for him.
Good luck~ "
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Reply #4 - 02/11/11  8:46pm
" thanks so much for the replies , nice to here from everyone "
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Reply #5 - 02/11/11  9:32pm
" Hi
My Hubby just started round 2 of Sutent 50 mg. He has kidney, both lungs and now the spine. Sutent is a tough one for us. He has barely been to work since he started it. The exhaustion, high bp and one round in the hospital for low sodium. We are hoping round 2 is better than 1. "
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Reply #6 - 02/12/11  4:00pm
" well started the Sutent today , time will tell "
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Reply #7 - 02/23/11  8:27pm
" day 12 and so far ok...some sides but not too bad...always need to know where a bathroom is ..lol...aches and heartburn...if it works i'll feel very happy "
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Reply #8 - 02/25/11  2:09am
" Glad to hear. Hang in there> "
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Reply #9 - 02/27/11  11:28pm
" Hi, my husband Steve has been on Sutent for the last 4 1/2 years. I would be happy to speak with you. Prayers for you, Wanda "
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Reply #10 - 02/28/11  8:45pm
" ty WANDA...this is so hard to deal with , the sides are really starting to hit (day 17 ) "
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