What is Reflex Sympathetic Dystrophy
Complex regional pain syndrome (CRPS) is a chronic condition characterized by severe pain following injury to bone and soft tissue. The International Association for the Study of P...
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help please /any ideas
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Unrelated to my shoulders and arms c.r.p.s over the last several weeks I have started to get what started out like tingling in the bottom of my feet at the point where they were resting on the floor or touching the arm of the couch for example. I would adjust position thinking position/circulation might be the cause. but it did not seem to be. but to shorten this up over the last several weeks it has gotten severely worse it is now the whole bottom of both of my feet it is incredibly painful can not walk on them nothing helps to stop it. Feels like a million red hot electrified needles jamming into my entire soles both feet and last twenty to thirty minutes. and seem to become much more frequent much more intense.also the last week or so the front part of my upper left leg has become very painful just beneath the skin and very hot to the touch. and cannot stand even material against my skin. a lot like my crps in my arm. but no injury to left leg... please any ideas this is killing me and becoming scary. thanks Terry
Posted on 06/17/09, 10:06 am |
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Terry have you researched your rsd online? there are some great resources that help you understand RSD symptoms and progression. Here's a few:
www.rsdhope.org www.rsdfoundation.org It sounds like your feet are related to your rsd however I am not a doctor and your really should see your doctor about this, as it could be serious. Check out the above websites and if you google rsd there are more. maybe it will help. Sorry you are having so much trouble and I really wish you gentle hugs and a good day :) Mountainmom 
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Well I have almost had the same type of thing, weird eh. I am starting to think this disease has no limit's at what it can't do.
Melissa
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Hi Terry,i think your crps has spread.I injuryed my right wrist but 12mths later its in my right foot/leg,my bladder & right side of face.Specialist says that it can spread,im having 2 stims put in next week & hopefully this will relief my hand/leg.Its a real pain when it spreads but you need to relay your concerns to your doc.
Regards & best wishes Cancergirl66
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thanx guys for your thoughts and ideas.. I already have a double spinal chord stimulator implant. it seemed to help at first for a few months. but now barely any relief at all...and if all this is caused by spreading then I am screwed. I can barely walk now.. and this started with a severe shoulder injury..
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hi i have just joined the group i am curious about your symptoms i have had burning and tingling in both feet for years i was first prescibed neurontin but did not like the side effects i am now on lyrica and it seems to help i did not know that this was a symptom of rsd since i was just diagnosed with it can someone tell me what other symptoms are? i hope you find some relief from this i know that it is a horrible feeling
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Isn't this RSD a frustration to deal with? Glad I found this group as it's difficult to explain and to be understood. . . except with others who've experienced it.
On my lowest day, I decided that if this was happening to a member of my family, I would have done everything I could to find help for them, and I wasn't doing the same thing for myself. That day I got myself up out of bed and started reading everything I could find on the web about RDS and all the related diagnosis. I am still searching for my answers, but I've been fortunate to start putting together a team of doctors and a massage therapist who are helping me gain understanding and a sense of ownership for my care. I recommend reading a book, "Positive Options for Reflex sympathetic Dystrophy" by Elena Juris. One of the chapters is a conversation with Dr. Edward Carden. His treatment made sense to me, and the blocks I'm receiving from him have reduced my pain considerably. He is a true teacher and will work with other doctors to teach them his techniques and theories. So, you can have your pain specialist contact him. . . www.discmdgroup.com. I'm going on and on, but this is the first time I've talked about it with anyone but those closest to me. I've been going down this road for 30 years, when I was hit by a lightning strike that came into my house through the wiring. Would all of you share your best resources for information and treatment? And, maybe we can move the treatment of RSD forward more quickly for all of us!!! The Lightning Lady
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