What is Reflex Sympathetic Dystrophy
Complex regional pain syndrome (CRPS) is a chronic condition characterized by severe pain following injury to bone and soft tissue. The International Association for the Study of P...
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Hello. I am new to the group and thank god for having found you folks. I have been having a terrible time. pain level 10+ for days at a time cant get off of my couch where i live and sleep. when i am able to sleep.the only narcotic pain med I am on is opana 20 mil 3 times a day.It is not enough but it kind of helps me at least get through the day.a lot of Tylenol and ibuprofen. my new pain clinic Dr. is going to cut off my opana. I will not be able to stand it.I am being treated by a psychiatrist and and a psychologist. for depression that goes with chronic pain. I know I am not alone in this am I? I guess I am just hoping to find some people like myself to talk to .
I was hurt on the job in oct of 05, had surgery on my shoulder in April of 06 It went terribly wrong. I never felt such pain as soon as i woke from surgery. I knew something was wrong as a few weeks went by i continued to complain to the surgeon he told me i had RSD and said it was like 1 in 20,000 chance following this type of surgery and referred ME to a pain clinic in Massachusetts . about an hour and ten min from my house where I have been treated like a pill seeking drug addict ever since. I dont know.. just looking for a friend out there. it takes me a long time to type so forgive me.. anyone ???? likeminded.. Posted on 06/11/09, 08:06 pm |
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Hi,
I know your story, I am living part of it, Hurt on the Job 2007 left arm, Surgery 2008, home rsd, can't work, and dependant on the stupid worker's compensation insurance for meds treatment etc...took me a while longer to find a PM and not sure if it will be good or bad. What ever happens you have to find that one thing worth living for-for me it's my husband. And just remember- you say you can't do it anymore, but you are in reality. I kept saying I couldn't take any more pain, yet here I am doing just that. We are stronger than we think, and if you look hard you can find the reasons worth living for... Hope this helps, I'm not feeling well tonight but just needed to respond to let you know your not alone...and this is the right place to talk to people 
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Mountainmc.thank you very much for your reply and understanding.I do have a girlfriend who is as strong as steel. but I put so much on her ya know? in Oct of 05 I was the manager of a $2.5mil annul restaurant, played football with the kids, rode four wheelers on the weekends etc. now my girlfriend has to open my Gatorade's for me. and help me shower and dress. I am only just 44. no longer able to provide financially. she has had to take a job @ Mcdonalds for minimum wage.
Again I never expected the way I have been treated by some of the doctors. I do have a lawyer of course but he seems to have his own agenda and his own pace.. well anyway thank you again for your reply. my psychologist assured me that there were others out there like me I only needed to look.
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Keep talking to others with RSD.
It helps, A LOT! We have all been at the giving up place. It is not easy or normal to find a life with what you have left from RSD. For shizz sake, find a dr who isn't a dang d-bag. They do exsist and it is worth the effort. It is hard enough to go through this. You sure the heck don't need to be navigating this cluster pluck without quality, compassionate medical care. That would make anyone suicidal.
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thank you guys soooooo much. it is nice to hear supportive words
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