What is Reflex Sympathetic Dystrophy

Complex regional pain syndrome (CRPS) is a chronic condition characterized by severe pain following injury to bone and soft tissue. The International Association for the Study of P...

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Discussion:
lost and confussed-just need to vent
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Has anyone had their doctor's change their minds about treating you? I seem to run into it alot. My current doctor changed his attitude when he recieved a report from an independant medical exam requested by my worker's compensation insurer, and my care went down hill from there. He has now stated he doesn't want inbetween the insurance and me, and is obviously leaning toward what ever the insurance wants- no matter what it will do to me physically. I then found out the IME report states their diagnosis of what's wrong with me is "Chronic Pain Syndrome associated with non-organic findings and narcotic drug dependency"
my first reaction was to quit all perscribed drugs, find another doctor, and give in on the worker's compensation case. I have an appointment soon with another docter who had done a consultation and found "probable cause for RSD steaming from the wrist sprain" etc. She was really nice and her report showed she really listened to me, and wrote an excellent report.I don't care about the stupid worker's comp case anymore, I just want to feel better. So why am I so lost? because every time I turn around it seems like I am fighting for the right to be seen and heard about the problems I am experiencing in my arm, now they say it's all in my head and I'm a junkie...I just can't take anymore of this! My poor husband begged me to take the stupid pills, he can't stand it when I don't because I can't move, just lay in bed and cry alot when even a breeze touches me...which makes me feel like a wimp because I can't stand the pain and need the stupid drugs.I wish I could be stronger because all I want is to live the rest of my life doing the best I can for my husband and children...but sometimes that seems impossible with needing doctors to just move or continue breathing...how do you stop from just giving up?Sorry I'll stop for now, I know I am just way emotionally and physically stressed. Maybe the new doctor really will help. But somehow I can't even hope anymore, and just figure she will turn out like all the rest...had to give up my tens unit today...stupid doctor after talking about it for several visits on how well it did or did not work, wrote on the renewal request that he didn't know about it and did not perscribe it...only half true...sugeon approved it right before I came to new doctor so he didn't sign for it, but he did know about it...but want's no responsiblity because of IME...wow again sorry.
Hope you all are feeling good today, and thank you for letting me get some of this out...: )
Posted on 06/05/09, 11:06 pm
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Email me when others reply to this topic help
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Reply #1 - 06/05/09  11:21pm
" Hi everyone who reads this- I am not sucicidal at all just depressed and needing to vent. I am fighting the depression- just so very tired right now of it all- the pain, doctors, insurance companies everything. Why do the doctor's lie? "
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Reply #2 - 06/05/09  11:43pm
" Finding the right doctor is the key. But you can never give up as hard as it is you have to keep going. And workmans comp. is a stresser even when you feel great but always have to go to the appointments. And stress the way you feel. With confidence in yourself. When I start almost 20 years ago with workmans comp. But I had a very good adjuster but you need to fight for life time medical because that has saved us on bills and meds. The doctors well be life time for a lot of us. But not everyone. always keep in touch with one I got mad and went a few years not going to a doctor and it was hard to find one that would see me. But as bad as things seem remember you have to tell yourself there is always some one worse. That is what keep me going a lot of times. Because people that do not have the problems we do. Do not under stand. But I well end with the fighting with workmans comp. is worth it. and just think spending the time fighting with them your not in bed. And going to bed and hiding made me worse I had to find things to get my mind off me. And it helped for that moment . Those moments begin to sdd up and make the days better. Good luck with all. "
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Reply #3 - 06/14/09  9:53am
" Holy shizzam.
You might think about getting that narcotic drug dependency out of your chart. It is your chart. You have the right to request that inaccurate information be removed.
That cannot be helping your care.
I make sure I know what's in my chart. This is because I could not figure out why my SSDI got denied. After hiring a lawyer, I discovered that an entirely lousy, painful, money grubbing consult has stated I did not have RSD.
Bullstuffing!
The medical chart needs to be accurate in order to get good care. "
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Reply #4 - 06/16/09  12:14am
" Well I fired the doctor and got what so far appears is a good pain management doctor. Had to go 60 miles one way to her office but so far appears to be good. She has ordered more diagnostics and is going to rebuff the IME for me. She said it wouldn't be hard, it was just a typical IME for a permanent injury. So cross your fingers for me and send up a little prayer on my behalf that I finally found a good doctor, sadly only time will tell for sure on that one. And yes kitty I get all my chart notes and put in for corrections as needed. They just don't always do it. But I will fight this one big time, and it helped to have a doctor tell me that it is all bs and that she is sure I have RSD and that the insurance would fight hard but she was sure she could win. All that on the first visit of an hour long.....so we'll see.

Thanks everyone. "

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