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Chronic pain management tips
Learn how straightening up can ease your pain
Chronic pain management tips
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What is your RSD like?
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Hello everyone, I have been researching lots of different chronic pain conditions since I am not at all confident that my dr knows her ass from a hole in the ground. About a month ago, I self diagnosed myself with Fibro, after reading the symptoms & they fit me to a T. I brought my PCP a list of Fibro symptoms with mine highlighted & she said "Yes, it does look like you have FM". And I paid HER for that visit. :P
Anyhow, doing more research for the past month has me convinced that I also have CFS & possibly RSD but haven't done enough research on RSD to really be sure. I was hoping you guys can describe what your RSD feels like? Also, what kind of dr gave you your dx? I have an appt with a Rheumatologist next week & I'm praying he will actually try to help me. I had a spinal fusion in 2005 and woke up from that with numbness all down my left side (butt to foot). It was mildly annoying until the past couple of years, when I began having stabbing, "sparking' pain in that foot, often feeling like I'm being stabbed repeatedly with an ice pick & tons of sharp "prickles" in between and an area that hurts the most actually swells up. When it gets bad like that it feels like I'm stepping on a stone. It's been "flaring" like this off & on for a couple of years, although I have the pins & needles & milder stabbing every day. My ortho surgeon who did my surgery did xrays, sent me for a nerve conduction study & examined me & said there's nothing wrong that they can find & told me I should just go on disability and take my pain meds when I need them. I went to a podiatrist who did xrays, examined me, tried a couple different meds on me & eventually told me to go back to my ortho surgeon. OMG I'm getting tired of doctors not knowing anything or maybe just not giving a crap, maybe both... :( I'm sorry you all have chronic pain. I know how bad it sucks. I would really appreciate any input you can give me. I am just wondering if my symptoms fit RSD? Hugs & prayers for a pain free day, Chris Posted on 12/03/10, 08:57 am |
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good resources for RSD symptoms online are:
www.rsdhope.org www.rsdfoundation.org RSD/CRPS has many different symptoms and is a very large group of neuropathic disfunction/ disorders that share some common symptoms. It takes a lot of time in the doctor's office getting a diagnosis as most of it is by doctor observance over time. Check out the websites and they can help you more with this. Hope you find help for the pain, gentle hugs- mountainmom 
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There are real tests that can prove RSD over any other condition or with other problems.
Go to rsds.org to find out a list of tests and treatments for RSD as it may help you to help your doctors find out what is truly wrong. You won't be the 1st person whose had to self diagnose this disease unfortunately but there are tests that can prove it and at least that let's us know we aren't going crazy.
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I was diagnosed by a freak accident almost in that I was seeking help for TMJ when a specialist recognized my symptoms and gave me the diagnosis. He then referred me to a neurologist who specialized in RSD, but he is now deceased. My second confirmation actually came from a Podiatrist who looked at my feet and told me that I had RSD. I don't know what he saw, and I had not even told him about my other diagnosis as I was there for another problem. I had a hard time convincing and don't know if I ever convinced my Internal Medicine or Primary Care. So many doctors know so little about RSD as others have said that it is hard to get a diagnosis. The specialist who treated me told me that ER docs sometimes make a better diagnosis than others, but I have no personal knowledge of that. I wish you luck in finding a specialist. I would suggest that you also try to investigate any doctor that you may decide to see. There are some listed on the web sites that state they treat RSD, but if you check , they don't have good reviews. Just a warning!!!! I went to one who advertised, and I had a very bad experience and wasted a lot of money. I also have Fibro.
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Thank you for your insight. I will do more research on the doctors in our area. So far I have had bad experiences with all of the drs I've had. I pray you all are getting good pain management.
Hugs, Chris
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Mine was disgnosed with a bone scan test that showed positive results along with the connection to my described symptoms and leg apearance. I had 2 MRI's that failed to show anything wrong. I also had an EMG nerve conduction that was normal and truly isn't a correct diagnostic for RSD. My response to my first sympathetic nerve block later was also a way to confirm my RSD. Definately use rsdhope.org and rsdfoundation.org
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It sure sounds like RSD (more accurate term is CRPS). I have CRPS type I. It went undiagnosed for over 2 years, while I had X-ray after X-ray on a foot I severely sprained in 2008. An oath surgeon finally caught it and ordered two epidurals (which did help a bit). That was the extent of his ability to help me, and my primary care dr has her head in the same hole as yours. I got a referral out of network to see a physiatrist who confirmed the dx and has ordered pays therapy specifically designed for this as well as 8 sessions with a pain psychologist. Continued...
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The criteria for dx was the differences in temp swelling and color between my feet, as well as the pain. My right foot is colder than my left. Sadly mine was caught too late so it has spread up to my knee and to both hands. He put me on Neurontin and will consider more epidurals if needed after PT. The pain center also has a pool, meditation and adaptive yoga. I like the holistic approach. I have buzzing, stabbing and burning pain. Hope you find a good dr to be in your corner on this.
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Hi all,
I AM NEW HERE AND HAVE BEEN DIAGNOSED WITH CRPS. . aFTER FAILED CORTISONE SHOTS, FAILED EPIDUALS i AM GOING ONTO THE HOPS TOORROW FOR A SPINAL CORD STIM (TRIAL PERIOD) HAS ANYBDY AD THIS AND WS IT SUCESSFUL? i AM TRYIG TO BE POSITIVE BUT WITH ALL THE PREVIOUS FAILURE,IT IS RATHER HARD. iIF YOU HAVE ANY INFORMATION, IT WILL GREATLY BE APPRECIATED. SORY ABOUT THE CAPS...FOR SOME REASON IT IS STUCK ON MY COMP. THANKS AGAIN, MAYBERRY
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