What is Raynauds Disease
Raynaud's disease (RAY-noz) is a condition that affects blood flow to the extremities which include the fingers, toes, nose and ears when exposed to temperature changes or stress. ...
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Hi. My name is Katie, been dealing with chronic hive seen February 2008, first stint of hives was in 2001.
No allergies, nothing allergy related, I was told it's my immune system and what do you know, I saw my (first time ever seeing one) Rheumalogist and he said how have you been handling Raynaud's, I was like huh? So it is, and my GP or Immunologist failed to tell me so. So I have Raynaud's and currently have been taking Plaquenil for the hives, just been increased to 400mg, I know there nothing much you can do for Raynaud's, but I'm someone that is always warm and having cold hands and feet, toes turning, blue, purple, white, etc. I thought I had a circulation problem. My blood pressure is fine though, etc. So glad I found this group, DS is amazing. Thanks for reading. Posted on 03/24/09, 06:03 pm |
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Katie, You are deffinately not alone. I have Raynauds too. And you know how Canadian winters can be. Especially in Ontario. My hands are always cold. Even in the summer I get it a bit. But winters. OMG painful sometimes. My hands and toes go bluish purple and then will turn white. Like there is no blood running throught your veins. Everywhere I go I have gloves with me.
Glad you got to see a Rheumatologist. They know what their are talking about. Make sure you tell him everything. They need to know to properly diagnose you. I wish you all the best. If you have questions. Don't hesitate to contact me or anyone on the board. Hugs Nancy 
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Hi there. Yes this canadian weather does not do anything for raynauds. This spring mine has been so bad from cold and dampness. Glad you know what you have now and hope they do bloodwork to check for other autoimmune stuff. hugs marilyn
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Hi. So sorry to hear about your bad turn of events. I developed painful nodules about a year and a half ago was diagnosed with Raynaud's and livedoreticularis. It is hard, we all know that. I live in New England, and that can get pretty cold sometimes. Sometimes I wear gloves all day at school! A lot of people ask questions, but I am happy to oblige.
Raynaud's has been both a blessing and a curse for me. A curse because of it's irritating side effects, but, also a blessing, because it has gotten me to think about my health. Take this as an opportunity to make sure you are living your best, and I promise you will fell better in nno time. Oh and Plaquenil is AMAZING! Out of the 4 drugs I take for Raynaud's and livedo, Plaquenil has worked the best. Good luck with your treatment!
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I just had one question and that is what is causing the hives. Just wondering If you may also have lupus or discoid. Hugs marilyn
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Anybody dealing with migraines as a side effect of Raynaud's? I find that if I go too many hours with out eating or drink less than I should, I get really bad migraines. I suppose the solution is to be good about eating and drinking. :)
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I get hives too, worse in the last few years (I'm 24 now ). I also get migraines, but not sure if it's related to raynauds. I do get them when I don't eat or drink as I am supposed to. I also get them thanks to narcolepsy and sleep deprivation. Stress can bring them on too, physical and emotional. To quote the Campbell's slogan : Mmm, good. lol
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I am wondering about lupus myself... as narcolepsy has recently been classified as autoimmune, can lead to the fibro I have, and I have read on here that Raynauds is as well? Maybe it all stems from a similar root or is part of a wider diagnosis? I don't know, maybe I don't want to go down that road.
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I know i don't want to go down that road! I have enough health problems to last me a life time. So i'll pass.
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i'm not sure what illness i get the hives from if i took a wild guess it could be from N or raynaud.
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