What is Pulmonary Hypertension

Pulmonary hypertension (PH) is an increase in blood pressure in the pulmonary artery or lung vasculature, leading to shortness of breath, dizziness, fainting, and other symptoms, a...

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New to PH Group
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Hi There . New to PH group and I will start Revatio soon as Insurance issues are handled .. can anyone offer any thoughts to me about starting revatio..My PH is secondary to Congenital Heart Disease ..Thank you ..Hope you all have a blessed day...Becca
Posted on 09/14/09, 11:09 am
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Reply #1 - 09/15/09  1:27pm
" HI, MY NAME IS MARIE, I'M ALSO NEW TO DAILYSUPPORT. BUT NOT NEW TO PPH. I'VE KNOWN I HAD THIS SINCE 1991. I TAKE REVITO, LETRIS AND ABOUT TO START ON VENTAIVS. I REALLY WANTED TO TELL YOU SINCE YOUR NEW TO THIS. PLEASE LIVE LIFE TO THE FULLEST. YOU BEAT THIS DIEASE DON'T LET IT BEAT YOU. GOD BLESS YOU. I HAVE BEEN BEATING PPH FOR18 YRS. THE DOCTOR SAID I WAS IN BAD SHAPE AND DIDN'T EXPECT ME TO LIVE PASS 5 YRS. I JUST STARTED TAKING MEDICINE FOR PPH ABOUT 4 YRS. AGO. I LIVE WITH 82 OR LOWER OXYGEN. YOU CAN DO THIS. I'M PROOF. "
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Reply #2 - 09/15/09  4:53pm
" Welcome.I've been diagnosed with PAH for about 18 months and when I finally got on Revatio it was like night and day. My shortness of breathe was better and I could handle activity easier. God Bless You and Goodluck.Eiliene "
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Reply #3 - 09/15/09  9:21pm
" Thank you for your positive thoughts ! I will get my revatio tomorrow by UPS from the specialty pharmacy.I hopeful it will help with my shortness of breath doinf basic household chores .. & not be afraid to excercise . I do work fulltime in a pediatric office .. My PH is mild , but just gathering laundry or doing stairs or trying to walk & talk at the same time .. I get short winded ..My goal is to hopefully not be afraid to do stuff and be more active. "
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Reply #4 - 09/16/09  11:04am
" HI BECCA, I'M VERY HAPPY YOUR GOING TO GET RELIEF. IF YOU NEED ANY INFO ON ANYTHING, FEEL FREE TO ASK.GOD BLESS& GOOD LUCK. "
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Reply #5 - 09/16/09  3:00pm
" Hi Becca,
I've been taking viagra (same as revatio) 3 times a day since December and have improved tremendously.
I had multiple bloodclots in my lungs which caused the PH and was very breathless even just pottering around the house. I think it took a few weeks before I started to notice an improvement but after 9 months I feel that I am still improving and my last pulmonary function test last june confirmed it.
I hope that you start to feel better very soon - Sandi x "

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