What is Pulmonary Fibrosis

Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothe...

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Discussion:
Wildly varying DLCO
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Hi My name is tina
I am new on this site and was diagnosed in March 09 with UIP/IPF I am a 45 yr old single mother. My dlco started at 71% in Feb, then 50% in May , then 61% in July and now it is at 44%. I am so confused on what this means if anything? Does this mean the disease is progressing fast? My doc wont answer that one. But my fev1 is at 79% and tlc is 80% and at pulm rehab my heart rate will go up to 150 but my 02 is at 99%. So it seems like I am ok. My head is spinning. What does all of this mean?

Thanks
tina
Posted on 09/21/09, 04:09 pm
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Reminder: This is a support group for Pulmonary Fibrosis. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 09/29/09  9:23am
" Hello: Wish I could help..I have been diagnosed with pulmonary fibrosis also. Not sure at all about the questions you have...have you done any internet research???
I wish you the best.
Oxfordns "
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Reply #2 - 11/01/09  9:13pm
" I am the same way all the information but the docs don't explain alot to people. I just took my breathing test and my DLCO was 23% I haven't been back to the doctor yet I just went by and got a copy of my test so I could campare it to my last one. Like I said I don't know what the 23% means but I know its not good "

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